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← Return to Grief Before the Loss
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Hello everyone, my first time on this website. My 46 year old son had glioblastoma for 18 months, he died this past August. My daughter and I cared for him in his home for the last 6 months of his disease, and monthly before that. My daughter and I mention to each other frequently that we wish we could help others going thru this. There are things we learned and reacted to that maybe could help others. Our Doctor explained the reason there are no guidelines is that everyone is different. While that is true, we often wished we could ask someone what they did in that circumstance. My comment is if there is such a place to help others I would like to know about it because we came up with some practical solutions to some problems we encountered and we would share that with others. Thanks, my heart is sympathetic to all the caregivers. Hang in there.
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Welcome, @jrfmother. It must have been so hard to lose your son, much too soon. Our children are meant to outlive us. What a gift to have your daughter support your son and you through everything.
Your doctor is so right. There are no guidelines or instructions for the caregiving journey. Every patient is different. However, there are tips to be shared and similar situations we all encounter and times that we need to know we're not alone and to hear "I get it."
If you could share one general tip for managing the grief and sadness before your son passed, what would it be?