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Adhesive Arachnoiditis & the Effects on Walking
Spine Health | Last Active: May 23 5:47pm | Replies (77)Comment receiving replies
Yes, I’ve been a member of the AA club since 1978– been a rough road. You must have a local (relatively) medical professional to help you. I’ve educated more Drs than I can count. In the last year, walking has become much more difficult, and we’ve found that AA is PROGRESSIVE! Yes it can get worse. So I’m going through a series of test to titrate the right dosage from my Medtronic intrathecal pump. Keep the faith a keep in touch.
Replies to "Yes, I’ve been a member of the AA club since 1978– been a rough road. You..."
I was diagnosed with AA in the early 70s after a laminectomy. I haven’t been totally pain-free since then, though I have had extended periods of time where I didn’t require medication. I was unaware that AA could have been affecting my back problems through all these years. I thought my bladder issues, where I had to be catheterized every few days, was the major symptom of AA and when that subsided the AA was healed.
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My AA reared its ugly head a few weeks ago and I’m still feeling the effects of it. I have had a Medtronic pain pump for about two years now and that has done wonders, but it didn’t help the severe muscle spasms I had a few weeks ago. That’s when they gave me the diagnosis of AA again. My pain management doctor is going to add baclofen to my next pump refill which should be next week.
I have had spinal issues since I was 10 years old, but nothing scared me like my AA flare just did!
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I too, just found out that AA can be progressive. Knowing helps me realize I’m not imagining things, but there isn’t much help out there for us.