Welcome to Connect, Peg.
I moved your message to the Brain Tumor group so that you can more easily connect with other members who have meningioma. You might be interested in joining the discussion "Meningioma - I'm scared to watch and wait" http://mayocl.in/2d9egF3
I'm bringing @lindajean into this conversation. She, too, has had multiple meningioma brain tumors.
Peg, we look forward to getting to know more about you. How many tumors have you had and how were they treated?
Absolutely! She feels she is in very competent hands. I definitely think she made the right decision to go to Mayo. I just worry if the Doctor's think she needs surgery again, she is so far from home. However I remain hopeful that all will go smoothly whether it is radiation, proton beam, or surgery. Thanks for thinking of us. Nancy
My sister has an appointment at Mayo Clinic July 26th for a 3rd opinion for 3 recently diagnosed meningiomas. Has anyone been a patient of Dr. O'Neill or Dr Meyer at Mayo? She had a meningioma surgically removed in 2001 after a seizure.
I am very worried about the possibility of my sister having surgery at Mayo when she lives in Atlanta. She had complications after her first surgery and had to have surgery twice more due to a hospital induced infection. I have confidence in the Docs at Mayo but she will not have me or any family there to visit and comfort her. Her appointment is with Dr. Burns on August 9th. Dr O'Neill told her one of the tumors on the right had grown 30% in one month. Any feedback would be greatly appreciated.
Thank You,
Nancy
Mine is left sphenoid wing meningioma. Wrapped around ocular motor nerves and left carotid artery. I keep telling my doc, I could really use the extra blood flow to my brain. I told him I coukd be borderline a genius if I my carotid wasn’t so squished.
Six months ago I was told I have two benign meningiomas near my eyes. Vision in one eye is already almost gone (over a period of about six years). I was advised to have surgery to remove the tumors. I'm very worried that I may come out worse than when I went in. I don't know what to do.
Six months ago I was told I have two benign meningiomas near my eyes. Vision in one eye is already almost gone (over a period of about six years). I was advised to have surgery to remove the tumors. I'm very worried that I may come out worse than when I went in. I don't know what to do.
Yep, my breast cancer found on routine mammogram while still small .....so nasty a grade and very fast growing type, when Mayo took it out (with good margins), they said I could have been dead in a year if it hadn't been found! We are warriors because we have fantastic medical care to keep us kicking! But we have to do our checkups to find such things 🙂
Hi and Welcome. You and I are in a similar boat, one of my 5+ tumors is in my sphenoid wing,and in the bone and tumor and bone are pressing on my optic nerve and have been for at least 7+ years. I did have that one excised as much as possible and the rest radiated. I can see pretty good considering. I just did gamma knife on the tumor on the left side and I'm a fan of radiation versus surgery, although I've had 2. We are definitely strong warriors and a good sense of humor doesn't hurt as well:-) All my best to you. peg
Hi and Welcome. You and I are in a similar boat, one of my 5+ tumors is in my sphenoid wing,and in the bone and tumor and bone are pressing on my optic nerve and have been for at least 7+ years. I did have that one excised as much as possible and the rest radiated. I can see pretty good considering. I just did gamma knife on the tumor on the left side and I'm a fan of radiation versus surgery, although I've had 2. We are definitely strong warriors and a good sense of humor doesn't hurt as well:-) All my best to you. peg
Thanks, best wishes for your courage to fight these invasions to your brain and will to use every weapon. Certainly lifted my spirits with the knowledge of your defensive actions.Appreciate your support, many thanks for your message.
Hi and Welcome. You and I are in a similar boat, one of my 5+ tumors is in my sphenoid wing,and in the bone and tumor and bone are pressing on my optic nerve and have been for at least 7+ years. I did have that one excised as much as possible and the rest radiated. I can see pretty good considering. I just did gamma knife on the tumor on the left side and I'm a fan of radiation versus surgery, although I've had 2. We are definitely strong warriors and a good sense of humor doesn't hurt as well:-) All my best to you. peg
Lindajean I read somewhere that the meningiomas could be caused, though not proven, by trauma to the brain I saw you mention in one of your earlier posts that you had a bad accident years ago. I was in a car crash where my head hit the windshield. Not that it matters really but I wonder if there is a corrilation. Have you ever been tested for the nf2 gene? Is there any family history of similar issues?
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Absolutely! She feels she is in very competent hands. I definitely think she made the right decision to go to Mayo. I just worry if the Doctor's think she needs surgery again, she is so far from home. However I remain hopeful that all will go smoothly whether it is radiation, proton beam, or surgery. Thanks for thinking of us. Nancy
I am very worried about the possibility of my sister having surgery at Mayo when she lives in Atlanta. She had complications after her first surgery and had to have surgery twice more due to a hospital induced infection. I have confidence in the Docs at Mayo but she will not have me or any family there to visit and comfort her. Her appointment is with Dr. Burns on August 9th. Dr O'Neill told her one of the tumors on the right had grown 30% in one month. Any feedback would be greatly appreciated.
Thank You,
Nancy
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1 ReactionAll of you women are true warriors. Sooooo glad I decided to join. Guess my next step is mammogram. See if I have issues starting there too.
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2 ReactionsMine is left sphenoid wing meningioma. Wrapped around ocular motor nerves and left carotid artery. I keep telling my doc, I could really use the extra blood flow to my brain. I told him I coukd be borderline a genius if I my carotid wasn’t so squished.
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1 ReactionRestorevision.com post tumor optic nerve treatment
Hi barbara. I just posted something for you to google. What ever your decision is maybe they can help restore some of your vision loss
Yep, my breast cancer found on routine mammogram while still small .....so nasty a grade and very fast growing type, when Mayo took it out (with good margins), they said I could have been dead in a year if it hadn't been found! We are warriors because we have fantastic medical care to keep us kicking! But we have to do our checkups to find such things 🙂
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1 ReactionHi and Welcome. You and I are in a similar boat, one of my 5+ tumors is in my sphenoid wing,and in the bone and tumor and bone are pressing on my optic nerve and have been for at least 7+ years. I did have that one excised as much as possible and the rest radiated. I can see pretty good considering. I just did gamma knife on the tumor on the left side and I'm a fan of radiation versus surgery, although I've had 2. We are definitely strong warriors and a good sense of humor doesn't hurt as well:-) All my best to you. peg
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2 ReactionsThanks, best wishes for your courage to fight these invasions to your brain and will to use every weapon. Certainly lifted my spirits with the knowledge of your defensive actions.Appreciate your support, many thanks for your message.
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1 ReactionLindajean I read somewhere that the meningiomas could be caused, though not proven, by trauma to the brain I saw you mention in one of your earlier posts that you had a bad accident years ago. I was in a car crash where my head hit the windshield. Not that it matters really but I wonder if there is a corrilation. Have you ever been tested for the nf2 gene? Is there any family history of similar issues?