← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

Discussion
Comment receiving replies
@windyshores

@sunnny65 I certainly have "flatback syndrome" https://www.medicalnewstoday.com/articles/flatback-syndrome#summary

Three out of 5 of my lumbar vertebrae are fractured as are 4 of my thoracic vertebrae. From that article it is the lumbar area that accounts for flatback syndrome. Did the neurosurgeon tell you why you have it?

I still walk and do tai chi. PT does massage only. I hope the MRI can give you answers so you can resume moving!

Jump to this post


Replies to "@sunnny65 I certainly have "flatback syndrome" https://www.medicalnewstoday.com/articles/flatback-syndrome#summary Three out of 5 of my lumbar vertebrae are..."

Dear @windyshores . I do have 5 fracture also. One in thoracic area and the others vertebrae. I did my liver MRI with contrast on Sunday ( it was my doctor’s order) and they did the spine at the same time. But a new diagnosis about my spine came before that. Just from x- rays You are right- neurosurgeons don’t like patients if they can’t have a surgery. I know that I can’t with my bone density. I am going to have another DEXA test this week. My pain is 10+ every day and this past week I am not able to go for a walk or do anything. I lost my previous osteoporosis doctor ( she was PA and offered me to go on Tymlos). I am not sure if Evenity giving me this pain. I got new doctor but she dismissed Evenity side effects and told tip finish 12 months.. I am not being able to exercise and not even walk all my body is supported only by my weak spine. I don’t have any fat and my muscles disappearing very fast. Yes, LDN is low dose of Naltrexone - I started two weeks ago at 0.5 mg and increased to 1 mg a couple days ago. I am not sure if this going to work. So far I don’t feel any difference - just increased headaches which I had from Evenity and Tramadol already. Besides LDN is blocking Tramadol. So, I stopped it. Only advice I have is to start new therapy and continue on LDN.