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Anyone have multiple meningioma brain tumors?

Brain Tumor | Last Active: May 29, 2023 | Replies (148)

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@fleurnz

Good Afternoon All, I hope its ok for me to add a post, as I am just interested in discussing and advice from others, thank you. My name is Fleur and I live in Kerikeri, Bay of Islands, NZ. There's no specialists here so I travel to Auckland to see my Neurosurgeon and for scans etc. I had surgery 4 years ago, then I had one tumor surgery went well, however 4 years later I have I think 6 now. In the last 2 years every time I have a scan they say more have turned up. I'm on watch and wait but I do have surgery planned long term for 2 of them. Just still watching for now, 1 is close to a vessel so just a matter of growing time. The others two are in too deep and ones somewhere behind the eye, but ok for now. Because I live in NZ we possibly aren't so up to date withthe latest trials, info etc, don't think we have any discussion groups, we are a small country etc, and I I'm not sure how many people get multiples this is no disrespect to my surgeon who is truely wonderful. So I am here for news, updates, friendship and anything that I can offer. Thank you everyone, wishing you all happy health and wellness, warmest regards Fleur

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Replies to "Good Afternoon All, I hope its ok for me to add a post, as I am..."

Kia ora and welcome to Connect, @fleurnz. We have several New Zealanders sharing here on Connect in various groups.

You'll notice that I moved your message to an existing discussion so you can easily meet other members talking about multiple meningiomas. If you click VIEW & REPLY in the email, you can read through the past messages and get to know @pegorr @cnesselroad @lindajean @nancye3 @barbarabx @eleanor1931seminara1931 @elewis and others.

Fleur, is stereotactic radiosurgery (SRS), sometimes called cyberknife or gamma knife surgery, an option for you?