Dear Colleen, Thank you for replying. I apologize for the delay in replying to you. Are you able to help me make an appointment? I am desperate for reduced pain.
On 10/30/23 a gastroenterologist at MNGI performed my 7th endoscopy since 1/15. Her report says: *Stomach Comments: Shape of the stomach was atypical, with level of the pyloric channel appearing to be "above" the level of the GEJ on retroflexion, with extreme J shape, and possible diaphragmatic h ernia at the pylorus/duodenal bulb. Difficulty navigating the scope ni this near 360 degree rotation, only allowing for D2 extent reached, with visualization to majority of D3. that she was unable to advance the scope through the nearly 360-degree rotation."
I have not been officially diagnosed with gastric volvulus. Recently, a stomach surgeon opined that I do not have any indications of a "true volvulus" Earlier he expressed that during exploratory surgery he untwisted my stomach from being rotated to the LH-side. Could I have partial or an intermittent volvulus? While rare it happens at least according to web-searches anyone can find.
Taking Lyrica, oxycodone and Tramadol every day is no way to live.
A friend of mine recommended the names of two Dr's. they described as outstanding. They are Dr. Andrea Wagner; GI Department (?) and Dr. Luis Tapias Vargus.
In this journey I am where I am at after following the steps that are written in research paper written by Dr. Seth Sweetser. Is it even possible that I could be seen by Dr. Sweetser?
As-is, I would see whomever was available. The best way I can describe my pain is like hell on earth.
I hope that the pdf documents arrived.
@saolson, Thanks for the detailed reply. However, I removed the attached PDFs because they contained personal identifying information. Messages posted on Mayo Clinic Connect are public and seen my members following the discussion.
If you would like to seek the opinion of Mayo Clinic experts, you can self-refer or ask your doctor to submit a physician referral. Here's how to get started http://mayocl.in/1mtmR63