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Anyone have a paraganglioma?

Neuroendocrine Tumors (NETs) | Last Active: Dec 16, 2024 | Replies (24)
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@scohen618

I just found out I have a second and maybe third paraganglioma, carotid body tumor, this new one seems to be near the base of my skull. I'm 33. What is it like living with para issues?

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Replies to "I just found out I have a second and maybe third paraganglioma, carotid body tumor, this..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 28, 2024

Hello @scohen618 and welcome to Mayo Connect. From your post, it sounds as if you have been previously treated for a paraganglioma carotid tumor. Is my understanding correct?

If this is correct, what type of treatment have you had in the past? Also, what type of symptoms are you having with this new tumor on the base of your neck?

I will also invite, @coachv, to this discussion to share with you about this rare tumor.

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