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Anyone have multiple meningioma brain tumors?
Brain Tumor | Last Active: May 29, 2023 | Replies (148)Comment receiving replies
Hi and Welcome. You and I are in a similar boat, one of my 5+ tumors is in my sphenoid wing,and in the bone and tumor and bone are pressing on my optic nerve and have been for at least 7+ years. I did have that one excised as much as possible and the rest radiated. I can see pretty good considering. I just did gamma knife on the tumor on the left side and I'm a fan of radiation versus surgery, although I've had 2. We are definitely strong warriors and a good sense of humor doesn't hurt as well:-) All my best to you. peg
Replies to "Hi and Welcome. You and I are in a similar boat, one of my 5+ tumors..."
Lindajean I read somewhere that the meningiomas could be caused, though not proven, by trauma to the brain I saw you mention in one of your earlier posts that you had a bad accident years ago. I was in a car crash where my head hit the windshield. Not that it matters really but I wonder if there is a corrilation. Have you ever been tested for the nf2 gene? Is there any family history of similar issues?
I had all the genetic tests and it was determined mine was a mutation. I have no family history of any brain tumors, though my father got prostate cancer when elderly. Did you have lots of xrays when you had your accident?
No exrays just a huge bump and mild bruising on my forhead above my left eye. I used to joke about being hard headed because my head cracked the wind shield but my head was fine. Lol
Ha! Can tell you have a great sense of humor! That is a GOOD thing when you have to go through all these medical challenges 🙂
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Thanks, best wishes for your courage to fight these invasions to your brain and will to use every weapon. Certainly lifted my spirits with the knowledge of your defensive actions.Appreciate your support, many thanks for your message.
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