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Need to decide to get a Covid Shot while I have PMR.
Polymyalgia Rheumatica (PMR) | Last Active: Nov 1, 2024 | Replies (74)Comment receiving replies
The new CDC guidelines for people with PMR or auto immune disease is to NOT get the Covid vaccine. This per my Rheumatologist. Three years ago I took the J & J vaccine, it put me in bed with writhing pain for six weeks while triggering a PMR major relapse. Today Im in a wheelchair unable to walk more than 25' or stand more than 5 minutes. Unfortunately, during the time of the new vaccine, the CDC took the J & J off of the market for 30 days for just this reason. Then, they put it back on the market because not enough of us were relapsing. It's been awful. Good luck!
Replies to "The new CDC guidelines for people with PMR or auto immune disease is to NOT get..."
Here are the CDC guidelines.
https://www.cdc.gov/vaccines/covid-19/clinical-considerations/interim-considerations-us.html
Perhaps I am missing something, but I am not seeing anywhere in there that anyone with an autoimmune disease should not get a Covid vax. The exact opposite appears to be the case.
Also, we should be asking whether PMR that is clearly in remission constitutes “having PMR”.
I have tapered successfully to 2.5. I have no PMR symptoms. My rheumy says we are no longer treating PMR. Do I now have PMR ? I think not.
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Interesting that the new CDC guidelines have changed to take account of possible bad reactions to the vaccine. In Australia the stated official position is still that overall the risks of not getting the vaccine outweigh the risks of having it, even if you have an auto-immune condition. Then they overstate the facts and say it is "safe and effective", implying that's the case for all who take it, though we know that to be untrue - and so do they.
It's just the government parroting the general principle that most vaccinations are beneficial for the community overall (true), and detrimental to some individuals who they're prepared to throw under the bus to achieve some benefit for the whole community. Individuals wear those benefits/risks, not the government. If we have an adverse reaction the government will just say they told us there were risks. I'm generally pro-vaccination but not while I have active PMR.