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Anyone have multiple meningioma brain tumors?
Brain Tumor | Last Active: May 29, 2023 | Replies (148)Comment receiving replies
Nancy,
I’d like share this post from @audrapopp on Connect http://mayocl.in/2rX8ue2. Audra may also be able to share more information about Gamma knife surgery to add to the information you're getting from @pegorr. Peg, did you have both Cyberknife and Gamma knife procedures?
Nancy, not to complicate matters, but I wonder if proton beam therapy might be an option. Audra shares her experience with proton beam therapy here: http://sharing.mayoclinic.org/2016/04/01/a-new-weapon-in-the-arsenal-for-patient-with-stubborn-cancer/.
Replies to "Nancy, I’d like share this post from @Audrapopp on Connect http://mayocl.in/2rX8ue2. Audra may also be able..."
Hi @colleenyoung , so far I have only had the cyberknife experience. The radiologist in Seattle had said I could choose either one for this next round of radiation, & I would have chosen Cyberknife because of the pressure/pain I already have in my head from my surgeries. I won't be going back to Seattle, but will probably do radiation in Spokane some time in November. They can decide which would be most beneficial. One of my new tumors on the left is getting close to my optic nerve, and on my right side my tumor has put a bend in my optic nerve so I'm anxious for treatment before it endangers my eyesight. All of us with brain tumors fight an uphill battle,but we can do it, and I believe in ALL for ONE, and ONE for ALL, and even with #braintumors, it's a beautiful life. peg
Good Afternoon Colleen,
My sister Jill has registered jill333. Can you please direct her to the correct groups and discussions.
Thank You,
Nancy
Thanks for clarifying, Peg. I can imagine that you're anxious about the surgery close to the optic nerve. I see you've connected with @barbarabx @kareniowa who shared their experiences with brain tumors close to the optic nerve.
I hope the sun is shining as brightly where you are today as it is where I am. It's a beautiful day.
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Colleen, I am forwarding all information to my sister Jill. She will be signed up today hopefully. If she seeks a 3rd opinion at Mayo Clinic, which location would be best.
Thanks,
Nancy