My neuropathy experience

Welcome @wjm, Your neuropathy journey sounds a little like mine which I posted in another discussion here - https://connect.mayoclinic.org/comment/310341/. My symptoms have pretty much stayed with my feet and legs but not into the hands. I do have some carpal tunnel issues pain off and on in my hands but it's not associated with my neuropathy. I also have balance issues like most folks with neuropathy but try to work on a few exercises and just keep moving daily. Trekking poles are a great aid for walking when I need exercise but I hate taking them on any normal day to day errands.

There are a lot of different discussions dealing with neuropathy. You might find it helpful to click on the search at the top of any Connect page and type in a few words or phrase. Here's a search using "neuropathy numbness only" - https://connect.mayoclinic.org/search/?search=neuropathy+numbness+only

One of the better sites I've found for learning more about neuropathy is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/. Have you done any research or looked into lifestyle changes that might help?

I was just diagnosed with neuropathy.
But my balance is so horrible 😞.
And it's not my ears.
Not my heart
Physical therapy doesn't work.
So I've started using a walking stick.
But I also have vestibular hypofunction.
Can't drive because of my unbalanced feelings 😪
Total life change.

@wjm - At first, I thought I was reading my experience with PN, started with tingle/numbness in toes around same time frame as yours. Progressed to ankles, and then towards knees. I have a slight amount in fingertips which makes me a pill chaser. In 2019, developed drop foot. Walking in a dark room is impossible - I'd say dangerous. Every doctor I go to says...are you sure you're not a diabetic? My wife is a type one, she tests me 2 or 3 times a year plus my yearly tests show normal levels. ALA helping? Not sure but I stay on it. Like John, I have no pain. Your question, found relief? I have not found anything that helps but, I believe (without evidence) that by remaining as active as you can, like walking can slow down progression. My PN has remained below my knees for about 5 years and has not progressed in fingertips. Keep moving, stay safe, best to you.

The neurologist hasn't prescribed anything yet just told me to use Nervine it's a cream haven't tried it yet.
But with being a pharmacy technician for 13 year's I know all the side affects caused by meds and I'm trying to just stay in much physical 🙃 I can but just standing in one spot for over 5 minutes it feels like my legs turn to concrete and number.
Best to you as well 🙏

Not all Alpha Lipoic Acid works. In my experience I have found some brands do not work. Perhaps try another.

What brand has worked for you? I couldn’t get a recommendation from a neurologist on whether the S or R form is important.

I think R-ALA is the one to use.

Please go to a chiropractor also. I've had some success.

I live in Canada and use Shopper's Drug Mart.