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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1363)Comment receiving replies
Dear @windyshores , just wanted to give you an update about my appointment with my new osteoporosis specialist. It was kind of short. She told me to finish Evenity and then come back. She told me to go to pain doctor and talk about my pain. My pain doctor doesn’t know how to help me with pain anymore, besides prescribing Tramadol or other drugs which makes my stomach to turn. I also seen neurosurgeon couple days ago and he told me that surgery is not possible and I just have to used to live with this pain. Basically he told me to get and prepare that my life is going dramatically change and I have no way out. He looked at me with some sympathy. It sounded to me like a death sentence. I remember you writing me about having multiple fractures and your improvement .My back pain is getting more severe. I am trying to walk and do some light stretches through the pain. Nothing is working. Not sure what’s next.
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@sunny65 what did your MRI show might be going on? Did the neurosurgeon acknowledge a cause for your painbased on the imaging? Do you think it is possible that the pain is not from Evenity? Evenity is known to cause joint pain. Is your pain joint-related?
If you still think the pain is from Evenity, you could stop it and go on a bisphosphonate. (I stopped after 4 months but I had done Tymlos. ) I understand your doctor told you to continue but you can communicate to your doctor that you want to stop and what should you do next. The doctor is bound to follow the protocol but you have a right to stop and given your pain level and the fact that Evenity grows bone in the first half and is anti-resorptive in the second half, I hope you can discuss stopping with your doctor.
Has anyone suggested steroids for you? Can you tolerate them? I wonder if steroids would resolve whether inflammation is involved. But they are strong drugs!
There is no solution for many kinds of pain- in my view. There is a program where I live that combines PT, OT and therapy (CBT). I am fortunate in that some days I can do tai chi and most days I take a walk. I do think you are wise to try to start moving. I watch a lot of movies on my computer! Doing art and talking to friends distracts me too.