Wow! Is it ever an eye opener for me read your story. It's also a good reason to turn your anger into your passion for advocating and learning more about the condition and what we each can do to help each other. My first 60 years were spent with not much concern about what I was eating other than did it taste good. My PMR is in remission but I have had two different flare ups with a six year remission and am now in another 6+ year remission. I also have idiopathic small fiber peripheral neuropathy and noticed that peripheral neuropathy is one of the common symptoms in adult Celiac disease - https://celiac.org/about-celiac-disease/symptoms-of-celiac-disease/. I've never tried gluten free eating but I have made a lot of changes the past few years to clean up my act and eat healthier.

I thought it might be helpful for others to share the following references to learn more the topic.
"Some people with celiac disease have no symptoms at all, but still test positive on the celiac disease blood test. Others may have a negative blood test, but have a positive intestinal biopsy. However, all people with celiac disease are at risk for long-term complications, whether or not they display any symptoms."
-- Symptoms of Celiac Disease: https://celiac.org/about-celiac-disease/symptoms-of-celiac-disease/
-- What Means When You have Silent Celiac Disease?: https://www.verywellhealth.com/asymptomatic-or-silent-celiac-disease-563125

Did your doctor suggest starting on a gluten free diet to go along with your PMR treatment?