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DiscussionNeed to decide to get a Covid Shot while I have PMR.
Polymyalgia Rheumatica (PMR) | Last Active: Nov 1 8:41am | Replies (74)Comment receiving replies
Replies to "I’ve had PMR coming up on two years now. I have had Covid three times. Long..."
Covid vaccine doesn't stop you getting Covid as you'd know, having had it 3 times despite being vaccinated. It just makes the illness less severe for most people. If your objective is not to get Covid again, you would have to take other protective measures, like not going to public places so much and wearing a mask, and asking people you meet with to let you know if they have been unwell or exposed to someone who has. I still minimise my trips to public places and always wear a mask. I have not had Covid.
The new CDC guidelines for people with PMR or auto immune disease is to NOT get the Covid vaccine. This per my Rheumatologist. Three years ago I took the J & J vaccine, it put me in bed with writhing pain for six weeks while triggering a PMR major relapse. Today Im in a wheelchair unable to walk more than 25' or stand more than 5 minutes. Unfortunately, during the time of the new vaccine, the CDC took the J & J off of the market for 30 days for just this reason. Then, they put it back on the market because not enough of us were relapsing. It's been awful. Good luck!
I agree with you. My husband got COVID last year despite vaccination. He just did not seem to bounce back. In May he was diagnosed with PMR & GCA, lost 95% vision in both eyes. So we got vaccinated last week as I do not think he would survive another bout of COVID. He had blood tests done last Thursday and we see the a rheumatologist on Monday to go over results. My husband’s inflammation markers were elevated but I hope not too much. I am nervous of what increasing prednisone will do. He already has moon face and looks like he is 9 months pregnant. He is almost totally blind so he doesn’t really see the change in his appearance. Good thing because I think he would stop taking prednisone. Sorry for dumping my worries on you. But bottom line is I think the benefits of vaccine outweighs risks at this point. Take care