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@barracudacool

I’ve had PMR coming up on two years now. I have had Covid three times. Long Covid combined with a few other things resulted in blood clots that almost killed me. Should have. Saddle pulmonary embolism. I am grateful I am not dead. 1st round of Covid left behind fatigue so bad I could hardly keep my eyes open for months. BEFORE PMR! This is a personal decision but my doctor has told me repeatedy I can not afford to get Covid again. It leaves something behind every time. For a lot of people. That’s why when someone says oh it’s just like the flu or a cold I almost jump out of my skin. No it’s not. It’s insidious. Hard choice but I’m getting the Covid vaccine. Last time only a few chills and a bad headache for the day.

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Replies to "I’ve had PMR coming up on two years now. I have had Covid three times. Long..."

I agree with you. My husband got COVID last year despite vaccination. He just did not seem to bounce back. In May he was diagnosed with PMR & GCA, lost 95% vision in both eyes. So we got vaccinated last week as I do not think he would survive another bout of COVID. He had blood tests done last Thursday and we see the a rheumatologist on Monday to go over results. My husband’s inflammation markers were elevated but I hope not too much. I am nervous of what increasing prednisone will do. He already has moon face and looks like he is 9 months pregnant. He is almost totally blind so he doesn’t really see the change in his appearance. Good thing because I think he would stop taking prednisone. Sorry for dumping my worries on you. But bottom line is I think the benefits of vaccine outweighs risks at this point. Take care

Covid vaccine doesn't stop you getting Covid as you'd know, having had it 3 times despite being vaccinated. It just makes the illness less severe for most people. If your objective is not to get Covid again, you would have to take other protective measures, like not going to public places so much and wearing a mask, and asking people you meet with to let you know if they have been unwell or exposed to someone who has. I still minimise my trips to public places and always wear a mask. I have not had Covid.

The new CDC guidelines for people with PMR or auto immune disease is to NOT get the Covid vaccine. This per my Rheumatologist. Three years ago I took the J & J vaccine, it put me in bed with writhing pain for six weeks while triggering a PMR major relapse. Today Im in a wheelchair unable to walk more than 25' or stand more than 5 minutes. Unfortunately, during the time of the new vaccine, the CDC took the J & J off of the market for 30 days for just this reason. Then, they put it back on the market because not enough of us were relapsing. It's been awful. Good luck!