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Anyone had swelling of ankles/feet and calves with neuropathy?

Posted by kevinversace55 @kevinversace55, Feb 3 9:27am

I had a cervical laminectomy and fusion Of C3 to C5 and now have neuropathy that started in my feet within the first two weeks after the surgery and has continually gotten worse and now has gone all the way to my knees. Burning, tingling, and some numbness, Neurologist has done nothing but meds. Gabapentin and lacosamide and no relief found yet. Currently trying infrared lights and just walking. I really don't know what to do and who to see but I surely do need some relief from this. All surgeon that did the op says is its residual nerve damage from the op. ??? Any info and suggestions will be appreciated.

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katvonkitty | @katvonkitty | Oct 24 10:10am

I have severe neuropathy in my feet (rt worse than lt) going up to my knees. I have bulging disc at l5 and s1 and coccidania. I also have neck bulging disc C5-6 and nerve compression that they've wanted to do surgery on for years but I keep saying no. I also have neuropathy in my hands up my arms rt to my elbow now.
I'm on Zonagran can't take Gabapentin.
My legs and feet swell terribly and turn red! They burn even more when they do. I use compression socks try to walk stay active. I wish they'd find a cure or a med.
I've had this for 10yrs just keeps progressing. That's what the Neurologist says it's going to be. Maybe someday someone will have a breakthrough! Good luck everyone and Blessed be.

REPLY
jeindc | @jeindc | Oct 24 12:09pm
In reply to @jabrown0407 "I have edema in my feet and legs. I've had it for 5+ years. I get..." + (show)
@jabrown0407

I have edema in my feet and legs. I've had it for 5+ years. I get lymphatic massages every other week, then compression treatments on the off weeks. I have also started sleeping with my feet on a pillow to help the fluid drain out of my feet and lower legs. It helps. I do not wear compression hose.
I don't have a lot of pain with my neuropathy so I don't take pain meds, but I have yet to find a doctor who cares about it once I tell them I'm not diabetic.

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I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2 hour ultrasound and the advice for & getting leg and foot wraps (bec going to get massages was not possible), my leg and feet swelling that came with COVID didn't go down. At all. The neuropathy has turned into burning pain in my feet and sometimes legs. THEN a visit to a long COVID "specialist" (in quotes bec I have doubts) said it was LIPEDEMA with lymphedema and that other than surgery, the wraps and elevation would help.

They've not.

And you're right: unless there is a specific cause like diabetes, most docs are not interested.

I am on pain medication that helps relieve the burning and was put on Duloxetin that is supposed to help "all of the above". I haven't experienced relief after 3 months; two of my docs (PCP and pain) have said to stay on it - note there is a recall of one brand not all.)

I do not know your gender. I am female and have read far too much that says our pain is ignored more than men's pain. (They may disagree! Individual experiences vary.) I know my QoL stinks and each day can be a different challenge.

Here's to us finding help.

REPLY
1 reply
Judyinjeans. | @judyingenes | Oct 25 7:05pm
In reply to @jeindc "I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2..." + (show)
@jeindc

I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2 hour ultrasound and the advice for & getting leg and foot wraps (bec going to get massages was not possible), my leg and feet swelling that came with COVID didn't go down. At all. The neuropathy has turned into burning pain in my feet and sometimes legs. THEN a visit to a long COVID "specialist" (in quotes bec I have doubts) said it was LIPEDEMA with lymphedema and that other than surgery, the wraps and elevation would help.

They've not.

And you're right: unless there is a specific cause like diabetes, most docs are not interested.

I am on pain medication that helps relieve the burning and was put on Duloxetin that is supposed to help "all of the above". I haven't experienced relief after 3 months; two of my docs (PCP and pain) have said to stay on it - note there is a recall of one brand not all.)

I do not know your gender. I am female and have read far too much that says our pain is ignored more than men's pain. (They may disagree! Individual experiences vary.) I know my QoL stinks and each day can be a different challenge.

Here's to us finding help.

Jump to this post

I agree, that woman, especially older woman, are pretty much disregarded from any conversation about neuropathy. And I didn't have Diabetes either so have been jerked around for YEARS!! I am in a great deal of pain, in my legs, all of the time. I am on steroids and 3 other pain meds which just take off the top of the pain severity.
I asked my primary doc if there is anything else for me to try...that I would be up for almost...almost...anything! She emailed me yesterday and said the "Pain Management" group (I attended group meetings with them a few years ago) suggested a "neurostimulation device." That's what she called it. Have any of you heard of this? Please advise...

REPLY
1 reply
jeindc | @jeindc | Oct 27 5:03pm
In reply to @judyingenes "I agree, that woman, especially older woman, are pretty much disregarded from any conversation about neuropathy...." + (show)
@judyingenes

I agree, that woman, especially older woman, are pretty much disregarded from any conversation about neuropathy. And I didn't have Diabetes either so have been jerked around for YEARS!! I am in a great deal of pain, in my legs, all of the time. I am on steroids and 3 other pain meds which just take off the top of the pain severity.
I asked my primary doc if there is anything else for me to try...that I would be up for almost...almost...anything! She emailed me yesterday and said the "Pain Management" group (I attended group meetings with them a few years ago) suggested a "neurostimulation device." That's what she called it. Have any of you heard of this? Please advise...

Jump to this post

I think it's something some friends have used. It's like a 'leg pump' if that's what they meant. For me, they said surgery as a last resort and I'm not willing to go that route. Yes to constant pain and yes that the pain meds just take the top layer off. It seems to all be getting worse so tomorrow, I'll contact 2 of my docs for more information but they say in essence stay the course. They put me on Duloxetine that they were sure would help - it helps others! - and so far I notice no difference at all. Pain is exhausting and I wonder if many doctors have never experienced it to know what we are dealing with.

Here's to less pain for us and others.

REPLY
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