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Replies to "Hi BLM1007, I wish you good luck with the Big 2. Is there a reason why..."
MAC & Bronchiectasis | Last Active: Oct 26 10:36pm | Replies (31)
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Hi BLM1007,
I wish you good luck with the Big 2. Is there a reason why Rifambin was not included for the Big 3 protocol?
I was on the Big 3 for a total of 18 months and very lucky to report that the side effects were mild. (only mild fatigue) My eyesight has gone down hill but it seems to be due to the Cataracts that need to be removed. I do have a mild loss of hearing in my right ear.....but lucky for me, I'm off the Big 3 as of 10/21/24.
Frankie160
Replies to "Hi BLM1007, I wish you good luck with the Big 2. Is there a reason why..."
Hello frankie160
I wonder how long you were on the antibiotics after you converted to negative for MAC
Thank yoy
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Frankie
I believe it is because I do not have a cavity with the Mycobacterium avium complex., which in itself has been showing as a mild infection.
Truth, I'm not sure if she, the pulmonologist, told me why no Rifambin. She did mention that she was not putting me on it. She may have mentioned why she was not putting me on it and I may have missed it, however, I don't think she did. If she didn't tell me I foolishly failed to ask her why not. She is a practicing spcialist/researcher for BE....very knowledgeable and well known in her specialty of BE. I had two areas of improvement via the CScan and one new area of mucus plugging in the lower left lobe. Hope to continue with improving and no more negative results of more mucus plugging. I shall see how it all goes.
Good report for you....off the meds. Congrats.
Barbara