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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@dadroot

Well, I came away pretty FRUSTRATED after talking to my Doctor. His view is that any REAL use of stem cell Therapies is still at least a decade away. If that's the case, it'll be out of my lifetime. He wasnt even open to my suggestion that he assist me into further researching the subject. He said that Kaiser Permanente would not pay for any visits to, say, a Neurologist. Grrrr
He DID warn me against using these 'providers' that pop up once in a while claiming to have a solution to this darned Idiopathic Peripheral Neuropathy.
In the end, I came away pretty frustrated with him.

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Replies to "Well, I came away pretty FRUSTRATED after talking to my Doctor. His view is that any..."

I found myself coming away from my neurology appointments feeling frustrated in the early months following my diagnosis. I was able to lessen that feeling of frustration only after I'd done a lot of reading about idiopathic large-fiber polyneuropathy and came to realize there wasn't much that could be done to relieve my symptoms, certainly nothing to make them go away. For relief, however, and possibly even to help slow any worsening of symptoms, I could be diligent about getting exercise and remaining as much as possible in motion. Although my balance is still wonky, it hasn't gotten worse. And a second EMG a year after my first (the EMG that had given me my diagnosis) indicated no progression. In the neurological world of no cure-alls, hearing the doctor tell me he saw no signs of progression cheered me to the nth degree! –Ray (@ray666)