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@1fancydancer

In 2012 I contracted Pseudomonas, I have no idea how. The Dr kept thinking I was having asthma problems. I didn't look sick for most of the time until the end. Finally after 5 Dr.s and the last being an infectious Dr he knew what it was. First question, how long have you been hoarse? I told him a year and that it felt like I was breathing through a thick web or a thick piece of cheese cloth. He knew what it was. Confirmed with sputum samples and got rid of it. By the end of the year my lungs were so damaged from the year long episode with Pseudomonas that all of the little hairy things in the lungs were either deformed and destroyed. I could no longer move mucus out of my lungs. That led to many other infections, one after another. Finally I got an airway clearance device but by that time I think I had already had so many infections and so much scarring, Bronchiectasis had arrived. If I had have found the correct Dr with the Pseudomonas sooner, I do not believe that I would have the lung issues that I have today.

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Replies to "In 2012 I contracted Pseudomonas, I have no idea how. The Dr kept thinking I was..."

Wow Sue.....you do have one of those difficult journeys many us have had go down to get the right diagnosis.
From the time you started feeling sick and your first visit to a Dr. to say "something is wrong" to the final and correct diagnosis with an ID doctor, how long was that, approximately.
For me I think my journey was about three years before my hearing "you have BE. by my PCP.
Thank goodness, for me, BE had not gone beyond what NJH indicated as mild, nor the infection of MAI. However, as I have stated in the last couple of posts.....I am to start on Ethambutol and Azithromycin.
Wishing you easy days this weekend.
Barbara