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@gretchenmpls

Hello @marmymoomy
I’m sorry to hear that you aren’t feeling well, it’s distracting and doesn’t allow us to live the life we’d like. It sounds like you’ve visited your PCP/GP and mentioned all your symptoms. Were there any tests they performed at all? If so, which ones? If not, there are still tests they can run before sending you to an endo. They can test thyroid by ordering a TSH, Total T3 and T4. You want the Total T3 along with TSH. What are the symptoms you have that make you want to test cortisol? If you have reasons for thinking it’s because you don’t have any energy or you feel like you are leaning toward more of the insomnia effect, cortisol results MIGHT give some indications but you would only get an 8am blood draw to start that testing. There are more tests around cortisol that would need to be done if that result is irregular. ACTH and DHEA could also be done from blood by a PCP. But, while it can be frustrating, its important to talk most about our symptoms to our doctors (no matter how you may feel a symptom is insignificant, it’s important to talk about) so they have the whole picture of what we go through. If you continue to feel strongly about particular tests then it’s ok to ask them why they feel that test is unnecessary. I’m not a physician, but I am a patient that has gone through tough experiences and also grateful ones to finally diagnose Cushing’s Disease. But I didn’t walk into a doctor’s office saying that I have a particular diagnosis, I focused on my symptoms and continued to be an advocate of those symptoms were not resolved and asked them what they thought the next step would be. I hope this helps in your journey.

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Replies to "Hello @marmymoomy I’m sorry to hear that you aren’t feeling well, it’s distracting and doesn’t allow..."

Many sincere thanks for your reply.I have every Hypo symptoms in the” book”( 4years now)and have seen a top Endoc. but no help whatsoever.My G.P.(who I believe is very good )out of desperation put me on T3 (20mcg Tertroxine)which made me feel worse.I will be seeing him next week after another blood test and intend asking him again for a script forArmour.It seems obvious to me I am not converting T3 which is why I feel worse.It feels good to share my experience’s with one that understands so thank you and stay well.

Thank you @gretchenmpls ! My cortisol levels did come back high ; I have other symptoms that lead me to believe I have a thyroid issue or adrenal issue… too much to go into here. Many symptoms I’ve experienced for a few years… many fall in line with my fibromyalgia, others could cross over into other diagnosis. I’ve had to “ fight” for having tests and certain specialists see me for about 16 years now… first medical issue being pelvic congestion syndrome ( but I didn’t know what it was at that time, just knew I was in severe pain, and could not stand for more than ten minutes…. Also other vascular issues, varicose veins requiring numerous surgeries, and sporting compression hose beginning at the age of 31 ) Also had to argue with my PCP four years ago about the many symptoms I have, and how I was quite sure it’s fibromyalgia ( judging from the symptoms of my Mom, two sisters, three of my aunts, and two sisters in law). Yes, we’re not Doctors, we’re the patients, but we know our bodies best, and we definitely know when something is way off.