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NET on liver: Question about treatments when no symptoms

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 11:54am | Replies (28)
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@vinnie694

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated origin. I have been on monthly shots since then. About (1 1/2 years .). Although no new tumors have surfaced a few have shown some growth.. Going for MRI today might be starting Lutathera treatments.. It’s hard to say, but maybe I’d be in the same position if they were just monitoring.. The Ocreotide injections did eliminate the hot facial flashes (Carcinoid Syndrome), which I am grateful for.. I hope all goes well for you..

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Replies to "I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated..."
beachboyarkansas | @beachboyarkansas | Oct 25 9:58am

Same to you. Tough to know exactly what to do.

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splendrous | @splendrous | Oct 30 8:20pm

Thanks for your reply. Have you been getting MRI's for the past 1 1/2 years to monitor? How often? Do you know what the dose is of the Octreotide injection you receive? Do you know what your KI-67 score was from your biopsy?
Dr I saw today recommends I start Octreotide due to my tumor grade 2 and KI-67 of 6-8%.

I am trying to understand if there is a predictable time for the Octreotide treatment to work prior to the tumor learning to resist it and start growing. So would there be a benefit to waiting till the tumor started to grow to start treatment. Where are you being seen for your treatment? Thanks very much. Hope the MRI was helpful as you make decisions.

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