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What’s left after my cure for nasopharyngeal cancer

Head & Neck Cancer | Last Active: Oct 30 11:45am | Replies (13)
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@caffinated1

Thank you, I’m trying my best to put weight back on but I have to do it slowly because after hydrating and feeding my stomach just gets woozy and I get neck cramps….yay….still not as bad as the first bite syndrome I had initially (nothing better than lower jaw and tongue spasms….and the really odd part was it was only the right side of my tongue that would cramp up….even more nuts is they’d always last for five minutes) but it still isn’t close to fun. One of my big issues other than health is with social security. I applied after going on disability and have been denied twice, now the possible 18 month wait for a hearing. All they need to do is actually look at my doctors records and better yet, see me, listen to me.

I would do anything if I could wake up tomorrow and be healthy and back to work. I’ve never wanted to be sidelined, I’ve always been a very active person and I loved working the job I had.

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Replies to "Thank you, I’m trying my best to put weight back on but I have to do..."
William Olsen, Volunteer Mentor | @hrhwilliam | Oct 24 9:01pm

Many times with social security disability people find an attorney who handles just these cases. The office is usually very close to the social security office in most cities. They usually get quick results but they pocket the back pay from when you first applied. To me in many ways it sounds like a scam but it works. You end up with disability SS plus Medicare part A, and B if you want it.
Or simply find a friend in the social security office and be a pest. A two year wait seems to be normal but it can be less.
I know you would rather work if you could. I know others in the same boat and they all wish to pull their weight sincerely. This wait and not knowing can eat a person up sometimes. There are people and organizations likely close to you that likely can help you out in the meantime. It’s OK to ask for help.
I survived this cancer for a reason and I know what it’s like to find your strong self helpless and fighting. In a forum similar to this years ago someone helped me through a very difficult surgery. I doubt I would have a life without that help. And we pass it on or pay it forward as folks now say. And I don’t mind doing this just as others near you don’t mind helping you out if you just ask.
You can do this, one week at a time.

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