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What’s left after my cure for nasopharyngeal cancer
Head & Neck Cancer | Last Active: 3 days ago | Replies (21)Comment receiving replies
Hi @caffinated1 Welcome to the Head and Neck Cancer group although I am sure you would rather belong to practically any other group than this. But life is what happens when you are making other plans, so here we are.
I hope you can crawl back up out of the unhealthy valley you are in so you can get a handle on simply dealing with the daily battles you are used to. Sometimes some of us have just surrendered to a recovery facility, costing us practically everything just for a chance at survival. There are no simple answers or simple solutions.
I myself at one point said to my physician, "Doc. Are we going to wait for the autopsy or are we going to figure this out and get me back to healthy?"
A doctor shouldn't tell you "Sorry". Sorry doesn't feed the bulldog. They should or really must either help you or make your last days comfortable. Ignoring you is not an option for a licensed physician and perhaps you should remind them of that fact.
I wish you well in the long run. Many patients here on this forum can help you dealing with issues that may come up. Don't hesitate to ask. Even if you just want to vent or chat, someone is here. Courage.
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Thank you, I’m trying my best to put weight back on but I have to do it slowly because after hydrating and feeding my stomach just gets woozy and I get neck cramps….yay….still not as bad as the first bite syndrome I had initially (nothing better than lower jaw and tongue spasms….and the really odd part was it was only the right side of my tongue that would cramp up….even more nuts is they’d always last for five minutes) but it still isn’t close to fun. One of my big issues other than health is with social security. I applied after going on disability and have been denied twice, now the possible 18 month wait for a hearing. All they need to do is actually look at my doctors records and better yet, see me, listen to me.
I would do anything if I could wake up tomorrow and be healthy and back to work. I’ve never wanted to be sidelined, I’ve always been a very active person and I loved working the job I had.