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Anyone had swelling of ankles/feet and calves with neuropathy?
Neuropathy | Last Active: May 23 3:32pm | Replies (37)Comment receiving replies
I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2 hour ultrasound and the advice for & getting leg and foot wraps (bec going to get massages was not possible), my leg and feet swelling that came with COVID didn't go down. At all. The neuropathy has turned into burning pain in my feet and sometimes legs. THEN a visit to a long COVID "specialist" (in quotes bec I have doubts) said it was LIPEDEMA with lymphedema and that other than surgery, the wraps and elevation would help.
They've not.
And you're right: unless there is a specific cause like diabetes, most docs are not interested.
I am on pain medication that helps relieve the burning and was put on Duloxetin that is supposed to help "all of the above". I haven't experienced relief after 3 months; two of my docs (PCP and pain) have said to stay on it - note there is a recall of one brand not all.)
I do not know your gender. I am female and have read far too much that says our pain is ignored more than men's pain. (They may disagree! Individual experiences vary.) I know my QoL stinks and each day can be a different challenge.
Here's to us finding help.
Replies to "I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2..."
Hi!
My neurologist though I had peripheral neuropathy, but after all the testing he think it may be lymphedema. It appears. He feels I should see a specialist, but can find one in Vero Beach, FL. I also had a bad case of Covid prior to getting lymphedema, if that’s what it is. My primary care doesn’t have a clue. It gets worse a night for some reason and when I press on my foot it doesn’t leave an indention.
Anyone on this site know a specialist in Vero Beach, FL that can treat this?
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I agree, that woman, especially older woman, are pretty much disregarded from any conversation about neuropathy. And I didn't have Diabetes either so have been jerked around for YEARS!! I am in a great deal of pain, in my legs, all of the time. I am on steroids and 3 other pain meds which just take off the top of the pain severity.
I asked my primary doc if there is anything else for me to try...that I would be up for almost...almost...anything! She emailed me yesterday and said the "Pain Management" group (I attended group meetings with them a few years ago) suggested a "neurostimulation device." That's what she called it. Have any of you heard of this? Please advise...