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One rheumatologist seem to think I have stiff person syndrome.
Autoimmune Diseases | Last Active: Feb 4 9:24pm | Replies (9)Comment receiving replies
The spasms in my legs and chest area started over 20 years ago; but they rarely happened. and when I would get in a tub with hot water caused the spasms in my stomach and chest area the spasms in my leg happened every now and then. Within the last 4 years the spasms in my legs happened everynight; heating pads would help the spasms after being pressed against my legs, arms and or chest area; it may take 10 minutes to an hour to release the spasms and contractions.
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Don't we love the heating pad!
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@houstor60 I don’t know if you feel up to traveling, but my doctor at University of Colorado in Denver is considered one of the best in autoimmune diseases that impact the brain. She just received a $2M gift to establish a stiff person syndrome clinic and treatment center at UC. I know that traveling now might be very difficult but, if you have a neurologist he could contact her peer to peer.
I encourage you to see how you can get an appointment with her.
I couldn’t get my photos of all her info to print, so I’ll try private messaging.