Reclast side effects

I'd like to insert a gentle reminder of the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) that help keep the tone safe, supportive, inclusive, and, above all, respectful.

Please keep in mind that we only have words on the screen to communicate our experiences, thoughts and support. Sometimes we bring the bias of our own experiences when reading the post of another member. We can share our experiences to help inform one-another, but we are all different and should always include our providers when making medication or health decisions.

I encourage you to review the guidelines and pay particular attention to guideline 2. Here's an excerpt.

2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.

Aquablation is a less invasive alternative to things like TURP. Fewer side effects and faster recovery time. High-pressure water is used to remove excess prostate tissue. The key is to make sure you find a good surgeon. I've been to three urologists, and I only trusted one of them. Anyway, I don't want to hijack this thread with another medical issue, but definitely look into it.

Not a problem here! Curious, have you experienced any side effects from this treatment? I know a burning sensation can happen to anyone. Retrograde ejaculation often happens and this is an issue for some and not an issue for others; I guess I’m at the age where it does bother. I tried Flomax and experienced the retrograde ejaculation and it really did not help with urine flow. I’ve had bladder cancer 5 x over the past 14 years; this too could play a part in the symptoms I experience on a daily basis.

Not sure if I have said or done something wrong; if so, please point this out as I mean no harm to anyone! Thank You in advance!
Danny

dannyanddebbie How ironic. I had the Reclast infusion and the very next morning I woke up with shoulder pain. Lots of other pains, too, but the shoulder pain is unique. Most of our bone/joint pain is in the lower extremities...weight bearing joints and bones. In the article about the 82 year old woman, she had "progressive weakness and tenderness in her bilateral upper extremities, including her hands, arms, and shoulders." There's the shoulders again. I had so many of the same side effects that she had. How could I not believe it was from the Reclast? And by the way, I didn't read the article and then decide I had the same side effects. I had been suffering with them for well over a year, long list that I actually wrote down, before I even saw the article. I'm still having those pains a year and a half later. Can't get a doctor to even look at my list. Can't get a doctor to even agree that it might be from the Reclast. So strange.
Your post about the Urolift is horrible. Just another example of how we need to get this info...real life examples...out to everyone. We can't sit silent and let the drug companies become rich on our misery.

I’m sorry you are still experiencing the same symptoms that I am! I pray that mine goes away, I wake 5-6 times a night with shoulder and feet pain; will not get another infusion! Do remember, everyone is different pain wise! It seems that every area that I’ve had issues with; including bladder seems inflamed from that infusion! Was never told about the potential side effects or I would never had it done!

I started going to PT and he worked on my shoulders, pain was much better until I went leaf blowing, kept me awake off and on All night!

In my case, there was a blockage, so Flomax wouldn't have helped. After a few weeks, everything was fine. I do take Flomax now because of weak bladder squeezing capability, and it's great, no issues. RE does happen but not always, I can live with it.

I thought about Urolift a few years ago, but the whole concept sounded scary and I wasn't interested. My first doctor suggested TURP, but then I found a really good surgeon who recommended aquablation. Not all the doctors do it.

But, your situation sounds much more complicated than mine. Are you happy with your doctor? I had to get another doctor to *properly* scope me and diagnose the problem. Like I always say: just because there's a degree hanging on the wall doesn't mean the doctor is good.

The problem is, some of us have to take a bisphosphonate and some of us even have to take Reclast (if we have GERD orals aren't possible) or else we lose the gains from the other meds. With 7 spinal fractures, what are my choices? I have some neuro side effects that are probably from inflammation- I am investigating other causes. My solution so far has been to do low dose Reclast more frequently, with one hour infusion and IV hydration. Even McCormick did a bisphosphonate to "lock in" gains from Forteo. For me shoulder pain (which happens not to be my side effect) is not as bad as crawling on the floor in pain from fractures and permanent difficulty lifting a bottle of seltzer or opening a window.

@dannyandebbie That is exactly the kind of bad result that I was afraid of when I decided against Urolift. Sorry that happened to you. As best I could tell having pain and needing the Urolift removed happens only to a small number of men but if you are one of them - just like with the osteoporosis meds if you are one of them with long term side effects, it's the s..x.

Your comment here is more detail than I was able to find when I was looking into this several years ago. I'm still trying to figure out what to do, so thanks for sharing your experience.
Were you told that to remove the clips that they would have to remove part or all of the prostate? Since the Urolift procedure has failed and now is removed have you decided on anything in terms of helping with urination?
Best of luck to you on this and on dealing with osteoporosis.