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I dont know what to do anymore...

Autoimmune Diseases | Last Active: Nov 2 8:22pm | Replies (24)

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@slkanowitz

I wholeheartedly ditto what Arne just suggested. I am 74. I have multiple autoimmune diseases and am very debilitated. I have just recently started to focus on something joyful, something for fun, out of the house, every day. It truly works to have something to look forward to, a change of scenery and see the beauty in our surroundings. My other suggestion is to see an immunologist or at least get your rheumatologist to order immunoglobulins in your serum. People with auto immune diseases can also have immune deficiencies. That could be why you are getting MRSA infections. An infectious disease doctor would certainly do that as well and be the expert on treating and preventing MRSA. It sounds paradoxical, but the autoimmune disease means you’re producing too many antibodies against your own cells and the immune deficiency means you’re not producing enough antibodies to germs. The immune deficiency can be treated to help prevent the infections with IV antibodies (IVIG). As suggested, pain medication helps you get through the day more comfortably and improves your productivity, mood. There are specific drug therapies for psoriatic arthritis and it seems you should be on one of those if you aren’t already. In-depth bloodwork is needed to uncover some of these hidden maladies. The usual routine bloodwork is insufficient to diagnose many problems and being told you’re just fine when you know you aren’t is so frustrating and dismissive. There are many of us here who can relate to your situation and would like to be helpful. understanding and encouragement go a long way in helping someone have the stamina to trudge forward through a journey of adversity. we are here for you!

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Replies to "I wholeheartedly ditto what Arne just suggested. I am 74. I have multiple autoimmune diseases and..."

I’m saving this for future reference, it’s brilliant. So many times I feel like one needs to know the “magic words” to say to doctors to get them looking at specifics. Thank you.

This is excellent advice! Do it.