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My neuropathy experience

Neuropathy | Last Active: Oct 26 12:00pm | Replies (9)

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@njed

@wjm - At first, I thought I was reading my experience with PN, started with tingle/numbness in toes around same time frame as yours. Progressed to ankles, and then towards knees. I have a slight amount in fingertips which makes me a pill chaser. In 2019, developed drop foot. Walking in a dark room is impossible - I'd say dangerous. Every doctor I go to says...are you sure you're not a diabetic? My wife is a type one, she tests me 2 or 3 times a year plus my yearly tests show normal levels. ALA helping? Not sure but I stay on it. Like John, I have no pain. Your question, found relief? I have not found anything that helps but, I believe (without evidence) that by remaining as active as you can, like walking can slow down progression. My PN has remained below my knees for about 5 years and has not progressed in fingertips. Keep moving, stay safe, best to you.

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Replies to "@wjm - At first, I thought I was reading my experience with PN, started with tingle/numbness..."

The neurologist hasn't prescribed anything yet just told me to use Nervine it's a cream haven't tried it yet.
But with being a pharmacy technician for 13 year's I know all the side affects caused by meds and I'm trying to just stay in much physical 🙃 I can but just standing in one spot for over 5 minutes it feels like my legs turn to concrete and number.
Best to you as well 🙏