← Return to One rheumatologist seem to think I have stiff person syndrome.

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@becsbuddy

@houstor60 Welcome to Mayo Clinic Connect! You’ve come to the right place. The members here are very helpful and caring. It sounds like you need a good diagnosis. Are you seeing doctors at your local hospitals? You may need to go to a comprehensive medical center or university teaching hospital. My husband did just that when no one could figure out what I had. The operator who took the call, asked lots of questions and figured out that I should be seen in the neurology department. So, at 0615 I was picked up from the hospital and driven to the university hospital where I still get my care. So try it, you have nothing to lose.
Here is a good article for you: https://www.hopkinsmedicine.org/health/conditions-and-diseases/stiff-person-syndrome-sps
How long have you been dealing with these symptoms?

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The spasms in my legs and chest area started over 20 years ago; but they rarely happened. and when I would get in a tub with hot water caused the spasms in my stomach and chest area the spasms in my leg happened every now and then. Within the last 4 years the spasms in my legs happened everynight; heating pads would help the spasms after being pressed against my legs, arms and or chest area; it may take 10 minutes to an hour to release the spasms and contractions.