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Dercum’s Disease: Looking to connect with others

Chronic Pain | Last Active: 2 hours ago | Replies (129)
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@c3p0

I was all set for this trial. (CBL-514) Had my paperwork in and e signed and was then told I was too old. That took all the wind out of my sails. I am starting all over again with another plan of attack but there is little else I can do. I wish you luck in your journey. This is such a frustrating disease due to the fact it is so unheard of and nobody I've seen seems to worry about it.

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Replies to "I was all set for this trial. (CBL-514) Had my paperwork in and e signed and..."
daylily4me | @daylily4me | Oct 24, 2024

Did they say why age mattered? Did they think you were going to pass away before the trial ended?

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madvzebra | @madvzebra | Oct 25, 2024

Boooooohisssssss
Researchers need to gather info on what we’ve been through and how our bodies work/respond as well. I’ll be 64 in March so I’m likely too old as well

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etboston | @etboston | 1 day ago

I was diagnosed with DD last year. The dermatologist with Kaiser recommended Ozempic. That’s what I have been taking for the last 2 months. I am 54.

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