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Dercum’s Disease: Let's create a support group

Chronic Pain | Last Active: 1 day ago | Replies (115)

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@c3p0

I was all set for this trial. (CBL-514) Had my paperwork in and e signed and was then told I was too old. That took all the wind out of my sails. I am starting all over again with another plan of attack but there is little else I can do. I wish you luck in your journey. This is such a frustrating disease due to the fact it is so unheard of and nobody I've seen seems to worry about it.

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Replies to "I was all set for this trial. (CBL-514) Had my paperwork in and e signed and..."

Did they say why age mattered? Did they think you were going to pass away before the trial ended?

Boooooohisssssss
Researchers need to gather info on what we’ve been through and how our bodies work/respond as well. I’ll be 64 in March so I’m likely too old as well