← Return to Post CAR T cell -- rash

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@kirkwilliams2049

I was infused Feb 20. I am part of a clinical trial where the CAR T cells are engineered locally in Edmonton. Alberta, Canada. Standard of Care currently calls for engineering in San Diego? CA. I am not familiar with the term GVHD. I have been with the same oncologist since 2015 when I was first diagnosed. I relapsed last October. Hence the CAR T therapy.

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Replies to "I was infused Feb 20. I am part of a clinical trial where the CAR T..."

Graft vs host disease isn’t a common occurrence with CAR-T because of using your own re-engineered cells. I only asked because I wasn’t sure if you’d previously had a bone marrow transplant or not. There are some cases of GVHD with patients who have had CAR-T following a bone marrow transplant/stem cell transplant. GVHD is common with people who have had stem cell transplants using donor cells. The new immune system doesn’t recognize the body (host) and will start attacking the body with any number of nagging issues such as rashes.

There’s a growing number of CAR-T recipients in the forum. It would be great if you’d like to tell your story and share your experience along with fellow members. Here’s a perfect place to start:
CAR-T Cell Therapy: Introduce yourself and connect with others!
https://connect.mayoclinic.org/discussion/car-t-cell-therapy-introduce-yourself-and-connect-with-others/
You mentioned you relapsed in October last year. If you don’t mind sharing, what was the underlying cancer?