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NET on liver: Question about treatments when no symptoms

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 11:54am | Replies (28)
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@splendrous

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from my local hospital. Metastatic neuroendocrine tumor in the liver. Grade 2 Stage IV. They did not recommend doing any further test to identify the origin. They view most likely the origin is from small intestines. Since I do not have any symptoms at this time, they do not recommend any treatment. Just monitor with scans on a regular basis. They did not provide a prognosis. Anyone been in a similar situation? I would like to know what I might expect in the future.

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Replies to "I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from..."
vinnie694 | @vinnie694 | Oct 25 9:36am

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated origin. I have been on monthly shots since then. About (1 1/2 years .). Although no new tumors have surfaced a few have shown some growth.. Going for MRI today might be starting Lutathera treatments.. It’s hard to say, but maybe I’d be in the same position if they were just monitoring.. The Ocreotide injections did eliminate the hot facial flashes (Carcinoid Syndrome), which I am grateful for.. I hope all goes well for you..

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