Lobular Breast Cancer: Let's share and support each other

Thank you so much! Sometimes my brain gets overloaded with all the new info but I still need to function in my daily life.
I am curious to hear if others with this BC subtype had any signs or symptoms before diagnosis.
New waters for sure. Appreciate your encouragement.

So glad to hear your oncologist is so knowledgable and reassuring. How is your surgery recovery going?

Good for you! It can be easy to lose yourself in this. My motto was keep moving forward! As for my symptoms, I had none. It was found during a routine mammogram, and I was told they were surprised it was even picked up. Stage 1A.

Recovery going well. I think because my lymph nodes were not involved, my arm feels pretty good. I've made an effort to get out and walk. 👍

That’s great to hear. I hope your recovery continues to go well and you can move on to the next phase.

There is a wonderful FB group: Invasive Lobular Cancer Science and Support, just use the search button. Be aware that there are a bunch of pseudo groups selling all kinds of stuff to cancer patients! Also, please join the FB group for Mepitel Film. It is a non adhesive film to use throughout your radiation to reduce the risk of burned skin. It is in clinical trials and not yet FDA approved but can be purchased from Mayo or medical supply houses in Canada. It saved my skin😊

Since I am new to this group, I’m never sure if I’m responding to someone or posting a new comment. This is new. This morning I met with my radiation oncologist (cancer patients have a lot of appointments!) Although at first he suggested one week of radiation, after reading the post-surgery pathology notes, he feels 3 weeks would be better. My core biopsy noted tubulo-lobular cells. But the path report on the excised malignancy was lobular and ductal. Because of the lobular spread (or some such thing) he wants to make sure he gets it all. I’m with him on that. But I was disappointed that lobular had reared its ugly head again. I think there’s more to learn about it.

Hello,

My Invasive Lobular Carcinoma Stage 3c was found last October. Many tests and a mastectomy,
later - 3 different chemo treatments and 33 rounds of radiation - ended at the end of August.
My burns were finally healed just last weekend. I'm now taking drugs to help stop my cells
from turning into cancer cells and hoping for more than the 2 years my oncologist gave me.
It figures I would get something that hasn't been around very long.

I hope you ladies are doing well

I was diagnosed with invasive lobular carcinoma in August. I had single mastectomy 3 weeks ago. Can anyone tell me when will this pain, soreness and swelling go away ? Is there any cream, etc to help with that?

I am new LBC patient. I have not started hormone therapy. I would like ask if every one who takes tamoxifin will has side effects, does anyone not have any side effects?