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Tymlos for Osteoporosis Experiences
Osteoporosis & Bone Health | Last Active: Nov 2, 2024 | Replies (43)Comment receiving replies
So, I’ve been attempting to begin a new prescription of Tymlos. I’ve been reading and hearing so many folks explaining how they began their own use by the method of titration. Literally clicking the Tymlos pen only 2 clicks to introduce their bodies to the drug. I have a wonderful rheumatologist who said she spoke with the manufacturer and they had no information regarding beginning by doing “less clicks” on the pen. In fact, she couldn’t confirm that by doing that any of the drug would be released. So, after reading so many posts about women using the process of beginning with say 20 mg of the drug as opposed to 80, which is what is prescribed. I’m left still with the question about whether or not you are getting a dose if less clicks are used! I welcome any responses of anyone with experiences that sound like this. Thank you all so much!
Replies to "So, I’ve been attempting to begin a new prescription of Tymlos. I’ve been reading and hearing..."
pgn@pn It seems that the drug is so new that everyone has to make the experimentation themself (by titration). I will wait for your further results. TY for your reseacrh.
I started Tymlos on 2 clicks, meaning to go up slowly because I am working as a voting assistant in early voting and the general election in Florida and we are talking about 14 hour shifts (possibly every other day for three weeks) and not knowing if I would experience side effects so I wanted to be cautious. I did by mistake go up 3 clicks on day 2 (I have continued that) and I definitely have some of the faster heartbeat for several hours, not crazy, but noticeable. That’s all, though, on 3. I plan after the election to start 4 and keep going up slowly. I feel like it’s better for me than going up fast and having a more pronounced reaction. I must say I am on meds for afib and fast heartbeat already (have had 4 cardiac ablations for arrhythmia) so I am a human ekg monitor. I can feel exactly when something is different. I am quite sure going up on the dose slowly is right for me, even if it means there is no real therapeutic benefit for me yet. Do what feels right for you, its a long time we’re on this medication anyway!
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@pgn two clicks will deliver (you can test this if you like by shooting in the air) but the dose is most likely not therapeutic. I think people should start at full (8 clicks) or half dose (4 clicks) unless they have a reason to start lower. I could not tolerate a full dose at all and did two clicks for a week or so and moved up to 4, then 5, then 6....The company and most doctors are bound by studies and only a full dose was studied.
Go ahead and try a full dose. If you have severe problems, go down on the dose. There are side effects no matter what for some of us but tolerating them is well worth it if you can.