Hello @lsm47 I was thinking about your post today while in the pool at the JCC. Given your spinal issues, have you ever done water-Physical Therapy or exercises in the pool ? Perhaps you should have another spinal MRI ?

I too had alarm bells go off when bilateral pains occurred , for me it was arms and wrists when I was at about 5 mg Prednisone. But CRP and ESR were not elevated and this particular sensation responded to Osteopathic manipulation!
I had a somewhat related thigh pain issue - and long story short - a sports medicine orthopedist from Boston's Childrens Hospital evaluated me with Ultrasound , and then I was treated with EPAT ( sonic wave therapy) !!

You said are on Acterma for a year now -what is the the follow up for that treatment ?- for are you officially in remission or at the least, spared from Gluccocorticoid use?

So over the last several months I have tapered to zero Prednisone and swimming and /pool PT has helped my leg and core strength. And I am assuming the EPAT has also helped.
Best of luck for your pain to go away ! - nyxygirl