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@pgn

Hello Needs,
I was diagnosed with systemic Lupus in 2011. I proved allergic to Plaquinel after getting a severe rash and was then put on 50mg of Azathioprine. I have had no side effects. I do contend with low slightly lower WBC and RBC. In 2015 I began having changes in my hearing. Sensations of feeling muffled that lasted hours to a day before clearing. My rheumatologist put me on 3mg of prednisone at that time and I was on that about 5 years. About 3 years ago I had a dramatic change in hearing in my left ear. My ENT could find no cause and suggested a form of tinnitus possibly. Due to some changes in my liver enzyme numbers my gastroenterologist put me on a 2 yr treatment of Budesonide (a low dose) and increased my Azathioprine to 75mg. My liver returned to normal levels and I’ve been taken off the Budesonide. With Lupus I had developed autoimmune hepatitis. The increased Azathioprine appears to be controlling this aspect of my Lupus.
With all that being said, for me, the Azathioprine has been a very effective drug. I would be very interested in knowing what is contained in your “green”drink? I’ve always believed my ear /hearing problems are Lupus related.
Good luck with your journey 🙏. I appreciate your struggle!

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Replies to "Hello Needs, I was diagnosed with systemic Lupus in 2011. I proved allergic to Plaquinel after..."

All of this is super interesting. I also have Lupus and a number of other auto immune issues. I first lost hearing in my right ear when I was in my mid-20s. At the time they diagnosed Mienere's Disease because I have vertigo as well. Twenty years later I lost hearing in both ears and had to wear hearing aids. Recently I had another episode of severe hearing loss and they started talking about auto immune hearing loss. I am on prednisone but they only have me on it for a short time so I am curious about the longer time some people are on it. I now think maybe it is part of Lupus and a Lupus flare. I sympathize with everyone and am glad to have found this community. Especially curious about others with lupus and other auto immune issues.