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DiscussionAnyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)Comment receiving replies
Replies to "Hello Needs, I was diagnosed with systemic Lupus in 2011. I proved allergic to Plaquinel after..."
All of this is super interesting. I also have Lupus and a number of other auto immune issues. I first lost hearing in my right ear when I was in my mid-20s. At the time they diagnosed Mienere's Disease because I have vertigo as well. Twenty years later I lost hearing in both ears and had to wear hearing aids. Recently I had another episode of severe hearing loss and they started talking about auto immune hearing loss. I am on prednisone but they only have me on it for a short time so I am curious about the longer time some people are on it. I now think maybe it is part of Lupus and a Lupus flare. I sympathize with everyone and am glad to have found this community. Especially curious about others with lupus and other auto immune issues.