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Anyone had swelling of ankles/feet and calves with neuropathy?

Neuropathy | Last Active: Oct 27 5:03pm | Replies (34)
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@jabrown0407

I have edema in my feet and legs. I've had it for 5+ years. I get lymphatic massages every other week, then compression treatments on the off weeks. I have also started sleeping with my feet on a pillow to help the fluid drain out of my feet and lower legs. It helps. I do not wear compression hose.
I don't have a lot of pain with my neuropathy so I don't take pain meds, but I have yet to find a doctor who cares about it once I tell them I'm not diabetic.

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Replies to "I have edema in my feet and legs. I've had it for 5+ years. I get..."
jeindc | @jeindc | Oct 24 12:09pm

I was initially diagnosed with lymphedema after having COVID and with it, neuropathy. After a 2 hour ultrasound and the advice for & getting leg and foot wraps (bec going to get massages was not possible), my leg and feet swelling that came with COVID didn't go down. At all. The neuropathy has turned into burning pain in my feet and sometimes legs. THEN a visit to a long COVID "specialist" (in quotes bec I have doubts) said it was LIPEDEMA with lymphedema and that other than surgery, the wraps and elevation would help.

They've not.

And you're right: unless there is a specific cause like diabetes, most docs are not interested.

I am on pain medication that helps relieve the burning and was put on Duloxetin that is supposed to help "all of the above". I haven't experienced relief after 3 months; two of my docs (PCP and pain) have said to stay on it - note there is a recall of one brand not all.)

I do not know your gender. I am female and have read far too much that says our pain is ignored more than men's pain. (They may disagree! Individual experiences vary.) I know my QoL stinks and each day can be a different challenge.

Here's to us finding help.

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