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I feel like start running and not look back!

Caregivers: Dementia | Last Active: Oct 26 2:12pm | Replies (123)
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@mariana739

Hi there,
your post really touched a nerve with me. My husband was diagnosed 2 years ago and even with treatment I can see how the disease is advancing. He is irritable all the time and my patience has a limit, so we end having awful arguments very often.
The thing is that no matter where I go to ask for advice on how to deal with him it's always the same: EVERYTHING is aimed at making his life easier with no regard to how mine gets more difficult by the day. " just go along with whatever he says", "look for ways to distract him", etc.
Who actually cares about us, the wives living with this 24/7 without an end in sight?

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Replies to "Hi there, your post really touched a nerve with me. My husband was diagnosed 2 years..."
bayviewgal | @bayviewgal | Oct 23 4:13pm

I feel your pain. At the beginning of my husband's diagnosis (2021) it seemed like everything I read or what was told, was how to make him comfortable and worthy, etc. and not much about the caregiver and what i would be going thru and i felt like I was going out of my mind. I finally got help with what I am going thru with local support groups. What a difference this has made. Everyone's journey is unique through the progression so being able to hear how others are handling it has been a tremendous help. This forum has helped also, but i also enjoy the interaction and conversations I get with the support groups. My husband has moderate to severe primary progressive aphasia so conversations are almost non existent.
Sending hugs and strength to you

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