Hi,
Unfortunately you're not wrong.
I have outlived my death sentence given by my previous Dr. My only recourse is to remind the Dr every time I see her in passing, I'm still here and very much alive, thank you. She gave me five years and I have snatched seven plus. Anymore is at the discretion of ANS.
To date my entire digestive system from end to end is compromised and under the whims of ANS, this is now a permanent feature. My BP, brain, eyes, limbs, stability, ears, hand eye coordination, temporary memory loss and other minor feature have become a daily obstacle course to wonder through. Just when I think I have a handle on it all I get hit with short term temporary paralysis from the waist down, usually stopping mid stripe and unable to command a move for a few minutes. Really weird feeling looking down at my feet unable to persuade from the waist down to move, like I'm wearing concrete boots. Then I might find I have lost the ability to speak, not knowing how to action the muscles to speak, felt like a right idiot, the brain searching rapidly for the tools to make speech. Touch wood my heart remains mainly unaffected by it all only giving me short periods of AF, just enough to shake up ED. But this is my life and I do whatever I can to fight on. I don't have a thirst for life particularly and have visited death before. All I can do is live each day as fullest I can trying not to waste a minute of it that I get to use.
Cheers