We have many dx’s in common, dear daily4me. Thus far I have been spared neuropathy but my mother suffered horribly from it. My research on her issues led me to explore the MTHFR gene. Testing indicated that I have a mutation, and since I’ve adjusted with appropriate supplements I have been feeling better. It may be worth looking into if you haven’t. It is VERY common with EDS.
Gene Sight testing is typically covered by insurance - it is helpful in determining how a person may respond to some classes of medications. They can also test for MTHFR gene variants which may yield very helpful info. My PCP ordered if for me.
Since you are lab-savvy you may be familiar with this, though an outside company did the testing (as is typical with genetic issues, it seems).
KUDOS TO YOU for doing all that gardening!! But man oh man, my body would be verrrrry cranky with me if I tried that. You must be in excellent shape, which is a testament for the need to keep movement in our lives.
Big hugs to you!!!