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@cjacobs99

I was diagnosed with Epithelioid leimyosarcoma that originated in my uterus in 4/2022. The cancer metastasized to my lungs immediately and I was given 9-12mths to live. I’m still here living with cancer because doctors deemed it incurable. Since then I have treated my lung tumors with SBRT (direct targeted radiation, chemotherapy (Doxorubicin, Gem/Tax) and lung surgery). All of these treatments were successful in removing, shrinking and stabilizing the tumors but due to this cancer’s aggressive nature I had another reoccurrence this year. Surgery is always my best option, so I would seek multiple options with a Thoracic surgeon before closing the door if you haven’t already. You didn’t say how large the tumor was mine was over 5cm when removed. My sarcoma specialist Dr. has seen patients have tumors surgical removed at 17cm. Location is key. But other options like SBRT and PEF (Pulsed Electric Field) ablation can be successful for larger lung tumors. PEF is a new technology offered by Galvanized https://galvanizetx.com/aliya-system/. I heard about it through Stanford which is where I’m treated. Chemotherapy was successful in shrinking and stabilizing tumors but it does not remove them completely.

I wish you the best of luck in finding a treatment option that will best suit your needs. Always ask questions, push back if you don’t agree with something or seek a second opinion. This is your life and it’s worth fighting for. Doctors don’t know everything and base everything on past practice and stats but there are underliers who defy the odds everyday. I’m living proof of that!

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Replies to "I was diagnosed with Epithelioid leimyosarcoma that originated in my uterus in 4/2022. The cancer metastasized..."

I am not a candidate for surgery due to COPD. I have finished my SBRT, now the wait to see if they got it all. I am praying they did. Thank you for sharing your story. It is so helpfu to hear from others who are dealing with this same monster, and living with it.