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Has your Primary Care Provider been helpful?

Lung Cancer | Last Active: Oct 30, 2024 | Replies (18)

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@flusshund

@lls8000, I'm also late to this thread. It's also been quiet for a while. I hope that all is going well, Lisa.

My perspective is that my PCP and my Oncologist are my friends. Other specialists are brought in to do a job, and I don't see them again unless they find an ongoing issue. I'm fortunate because PCPs were impossible to find in less than six months when I moved here. My top priority was finding a good Oncologist, which I did within a month. He then referred me to a PCP who he knows personally. In addition, my Radiologist, Cardiologist, and Nephrologist all know one another, which helps.

I've found my PCP to be an essential team member, primarily acting as the glue that holds my team together. As an LC survivor, it's easy to think that everything that's going on in my body is due to the cancer or treatments. However, my PCP knows all my tests and evaluations and schedules regular visits where he can provide personalized recommendations that more narrowly focused specialists don't always see. In addition, he requests additional blood tests, including thyroid and hormone checks, which my oncologist agrees is a good idea.

The only tricky part is ensuring he gets copies of all the specialists' results because every office uses a different electronic tracking system. However, a former British boss once told me the most significant difference between health care in England and here is that here we must be our strongest patient advocate.

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Replies to "@lls8000, I'm also late to this thread. It's also been quiet for a while. I hope..."

"we must be our strongest advocate"
That is the reality of it.
Definition: Patient self-advocacy has many different aspects, but at its core, it is about actively participating in decisions about your health. Practicing self-advocacy can help you get the support and medical care you need which can lead to better health outcomes.
Here in the US providers must now post test results and Notes on MyChart, availabe to the patient. I can always print results to take to my PCP but in my case his institution uses same system as Mayo and whatever shows up on MyChart Mayo shows up on MyChart of my local provider.