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Options if MAC goes untreated

MAC & Bronchiectasis | Last Active: Dec 15 9:59am | Replies (96)

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@pacathy

Sue, that is truly wonderful news! It sounds like a terrific team. It’s especially great that your angina is responding to treatment. I’m hoping you vocal cord therapy goes well.

I do have a couple questions. I was very surprised to read that you have no nodules on CT. Does this mean you have no trees-in-bud as well as isolated nodules? Ground glass?? I had thought all/most of us had them. Also, do you use albuterol nebs prior to walking or using saline?

I was also unfamiliar with NTM-it. I also ran across the slide about neb cups not needing to be sterilized-great news! I had missed that.
Thanks so much!

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Replies to "Sue, that is truly wonderful news! It sounds like a terrific team. It’s especially great that..."

I feel like the 7% saline must have cleared the residuals. I haven't seen the images themselves yet, just the report. It said "no change from previous CT" so that would indicate there is still some tree-in-bud but the actual nodules were gone in 2021. Ground glass is usually a transient finding as far as I know. It is the radiologist's shortcut for saying he couldn't see everything clearly, usually because of active infection or effusion. In my case, I have some mild atelectasis (collapse) or scarring in the lower lungs - probably the artifacts of all the prior infections, and some air trapping - I can live with those. But it does explain why I am having a harder time upping the intensity of my walks.

Do I neb albuterol? No - Our protocol is for me to use the Symbicort inhaler which has a long-acting beta-agonist before saline and before exercise. And I neb the saline 2-3 times per week.

Here is the link for NTM-it: https://ntminfo.org/
There is a helpful Q&A group (also called Connect) and lots of helpful resources.