I'm so sorry you have gone through so much.
I am 71 years old, and I wake up in the morning and think well what is going to fail on me today. Life now seems to be a study in downsizing the things I can do. I have 13 fairly large gardens, mostly on one acre of the four acres we owe and wonder why I didn't factor in getting old. They are getting very painful to maintain.
On Thurs I will see my PA (the internal med doc I was seeing is out for the year) and I will run by her the notion I have, that I have Dercum's. I counted up the lipomas I can feel on my left arm and the number is 10. I just discovered a new one in my shoulder right where I had the covid/flu shot and that one is sore when I press on it. I have lymphedema in my right arm from lymph node dissection. I am hoping I don't get painful lipomas there because doing surgery on that arm is a real no, no. I do have lipomas there, but they are not painful yet.
In my research I also came across info on that new drug, CBL-514, that is being fast tracked. I hope it gets approved and helps all of us.
I also have fibromyalgia, migraines (since I was 7 - I was always told that when I went through menopause they would go away - wrong, in my case), Raynaud's, chronic fatigue, insomnia, gastrointestinal issues, neuropathy, achy joints, defective aortic valve/aneurysm, wear a c-pap at night, hypothyroidism, anxiety/depression and brain fog. Good grief!!!
But even with all of that there is plenty I am thankful for, I try to screen out the ugly in this world and endeavor to create beauty through gardening, machine embroidery, painting and other crafts. It keeps me going.
I am a retire lab tech so if people have questions about lab related items, I may be able to help with that.