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Dercum’s Disease: Let's create a support group

Chronic Pain | Last Active: 3 days ago | Replies (119)

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@madvzebra

My father and I have vEDS (he’s passed) and cholesterol issues and very high triglycerides even when young/lean/active. I’m on a statin, zetia, and take ample fish oil which can help avoid additional calcifications. There are other blood cells a stroke doc tested on me (weird lab…) that were oddly sized and of concern. A lot of us aren’t run-of-the-mill creatures and it can help to find curious doctors.
I am also immunocompromised (low immunoglobulins) so get vaxxed and mask up in public places.
It’s all tedious, but I have cheated death a couple times.
Best of luck to you dear!

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Replies to "My father and I have vEDS (he’s passed) and cholesterol issues and very high triglycerides even..."

I have a daughter-in-law with VEDS and her 2 children have VEDS. I am so sorry you are dealing with this. My heart gpoe out to both of you