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Considering treatment for M. Abscessus
MAC & Bronchiectasis | Last Active: Nov 8 11:21am | Replies (40)Comment receiving replies
I had MAC and Pseudomonas. The only time M. Abscessus showed up in my culture it was determined to be an "artifact" - either from nasal mucus or contamination.
But clearing the Pseudomonas took 3 months and several tries at antibiotics. Finally it succumbed to inhaled Tobramycin. That delayed starting my MAC medications because the pulmonologist and my primary didn't think my body could tolerate all of it at the same time.
That was not the most fun time in my life, and my mind has been working hard to block the memories.
Replies to "I had MAC and Pseudomonas. The only time M. Abscessus showed up in my culture it..."
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Hi Sue. Glad to see your post. In May my sputum showed Pseudo was 4+ and M. Abscessus for the first time. In August 2024 it was a 2+ and a 1+ Pseudo and no MAC or abscessus shown. Not sure why sputum would not show abscessus. I'm hoping it might be a case like what happened to you. Maybe the sputum was contaminated. As far as the abscessus goes, I've had two positives in a row and now two not showing abscessus. I'm hoping that this means I only have to concentrate on treating the pseudomonas. My pulmo does not worry about treating it if I'm feeling OK--which I am. I do neb twice a day with Sod Chlorid--I mix 3% and 7%. I had been on Tobi off an on for the past five years. I was taken off it finally as I just could not take it any more.
Overall, I feel blessed that I seem to be doing OK--especially not positive for MAC for a few years. I'm going to check with my pulm to see if we can check sputum one more time before I see him in December.