Hi @johnjames, welcome to Connect. Mayo Clinic Connect is an online community where you can share your experiences, ask questions, get tips and find support from other patients. Can you tell us more about what you're going through?
Hi Kitty, welcome to Connect.
I invite you to click this link http://mayocl.in/2d3qTUi and join the group talking about Migraines. We look forward to getting to know more about you.
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
Kim- Thank your father for his service in Viet Nam, and I'm sorry he too is suffering from agent orange issues. Thank you for sharing your daily struggles of pain, PTSD and Panic Attacks- Yes they are real- even those we can't see them at times, that doesn't change the fact that there real and can cause real pain, and emotional pain as well. Allot of folks who know about such health issues doesn't make it less important and real. PTSD causes many health problems- The VA research team has come out with a new diagnosis connected to PTSD- " It's called - unknown serve internal anxiety" You can feel to your core and yet it doesn't show up in a normal physical. The many combat veterans have now been re-diagnosis' with this- as I have been as well. It doesn't go away, they give medication that only helps calm the anxiety some Folks that have these conditions need a true and trusted friend to talk to and fellowship with daily-if need be, and someone who isn't trying to give you an answer-or saying you should do this or that. You need a friend -who is a real friend that cares unconditionally. I hope that make some sense, it's very lonely when trying to get through the day by yourself. I'm bless with a retired Army Nurse and continues in her field. Bless you for sharing, and I so appreciate your transparency. JJ
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
The length or brevity of your posts isn't an issue. It's good to have a place to speak and be heard without being judged or viewed as an oddity. I don't have Parkinsons, but I am being treated for major depressive disorder, anxiety, restless leg, idiopathic peripheral neuropathy, and PTSD. I retired early from pastoral ministry, because of my mental health issues, and suicidal ideation. Neuropathy is a more recent problem, and so far, haven't yet found a medication that would treat the chronic burning pain. Chronic pain, as we all know, has a direct effect on depression, at least it does in my case.
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
Kim- thank you for sharing so much in detail-which I do very much appreciate- and nothing you say or anyone is babble- Yes I do have five doctors that I'm blessed to have working with me and all the health issues- including PTSD and the Internal Anxiety- Agent Orange as many know shows up or can, anywhere in ones body- and then it will travel wherever it wants. I had a heart attack three months ago and my Doctor at the Mayo clinic told me - she believes it was caused by Agent Orange. First time for me, to ever hear those words from a Doctor outside the VA Hospital. I hear you Pastor also, your pain and depression I pray becomes easier to manage, as manage is all we can do most of the time. The medications I take is for every thing from the Parkinson's, My Spine, my lungs and heart issues and on it goes- but I'm very thankful we have such good care here. As many of you have- been to other countries where the health care was only a shot or a small bottle of pain pills ( if your lucky). There is so much to digest from what I have read " From All of You" and each and everyone if important and listening to my issues ( I truly thank you and for your kindness and understanding). JJ
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
This is interesting, @19lin. Hydrodissection might fix a lot of people's pains from skeletal pressure on vital nerves. Would this injection offer a permanent fix -- as opposed to temporary relief from injection of a local pain killer?
What's surprising to me: I didn't know that MRIs don't display nerves! Ultrasound is better for this?
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
Interesting about MRI. I have never heard this and wonder if it is true or not. I noted, just for interest, the site is a site that posts paid content. A PR site. Might be valid, but I would want to know more from alternate sources.
Plus the other articles I read do not say there is no nerve information displayed via MRI.
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
I'm anxious to learn more about shortcomings of MRI in imaging nerves, as you are @IndianaScott. Libraries at NIH carry little on the subject, and what is there comes from sports medicine. In some of the articles/comments, there is mention of more use of ultrasound because MRI images aren't definitive enough. "Nerve entrapment" is the condition discussed, and it occurs when nerves are bound to muscles, ligaments, and fascia tissues, which may not stand out in contrast to nerves on an MRI image. Mayo mentions hydrodissection only in connection with ophthalmology treatment of misshapen cornea.
Thank you for writing and your thoughtfulness - My pain is caused by three difference physical problems, 90% is from the two wars ( Viet Nam I was shot and blown up-as was everyone I knew just about) and this war took a toll on my spine and lower back, I was diagnosed with agent orange Parkinson's- chemicals that were sprayed on all of us in the jungle at that time- which is deadly. I also was diagnosed with scoliosis of the lower spine - due from jumping out of Helicopper's off and on my whole career(44 years). The pounding bent my spine-as most of us in that skill set. I left the Infantry about 31 years ago and went to seminary to become an army chaplain- which I stayed in the infantry and from a number of crisis events -breaths in to much chemicals and other agents which- caused restrictive Lung Disease- which also causes pain in the lung and other side affects I won't continue to dump more on everyone- I'm sorry if I have said to much or talked to long. I'm not sure how this works or how much we should talk about- thank you-John.
Thanks for shareing so you have pain from depression amd it caused symptoms like Parkinson. I just spent 9 days at mayo in Minnesota with my client she went for her pain and her feet are bowed in and she can not walk she has other thing charlotte Doctors have diagnosed her with and mayo had a different view. They say it may be from stress which I found very hard to believe she had tremors spansisity and is very weak at times . And the list goes on . We go back in October for a mussel disorder and he thinks that al she needs is physically therapy which she did in charlotte . He said her brain needs to tell her feet to walk and they will fix them shelf .have never heard stress causing this much crazy stuff.
.
Thank you for sharing- and I agree with you- we all should respect and show compassion to everyone who is struggling with some type of Physical issue and pain. I'm really sorry about all the problems you have gone through and still are, your pain must be beside 24/7, something that is hard to live with- not to mention what it does to use after so long of continued pain and depression- which I believe goes hand-in-hand. And as you said, it doesn't matter where or how it happened- it's the fact that it is and is something those who are suffering must deal with and I pray not alone. Thank you again, John
Scott- you really hit on something- " Not alone", I find the people hear about ones serious health problems- the less they come around. I'm sorry to say there are friends, and than there are true friends- and if one if really blessed - you might have 2 or 3 such friends. One of the sad issues I hear from my soldiers ( is no one really cared anyway- they are referring to the VA system of mental health, which is a 40 minute discussion about your PTSD or your feelings of being alone without purpose, and then they are asked to leave and come back next week) They don't really get a chance to express the real problems-mainly because some don't know how to put into words how they really feel. We all need some one who will sit with you and let you dump and not correct everything you say and think they know better what you need- or what you are saying. It's a hard road- for me, my faith keeps me going each day- does that mean it's easy (NO) or because I believe in God I shouldn't have health issues- again (NO) no where does the good book ever teach we are given a pass from health problems. No question we all need each other- and to listen as well and be the kind a friend ( I believe) that is always there giving unconditional love and friendship. JJ
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Hi Kitty, welcome to Connect.
I invite you to click this link http://mayocl.in/2d3qTUi and join the group talking about Migraines. We look forward to getting to know more about you.
Kim- Thank your father for his service in Viet Nam, and I'm sorry he too is suffering from agent orange issues. Thank you for sharing your daily struggles of pain, PTSD and Panic Attacks- Yes they are real- even those we can't see them at times, that doesn't change the fact that there real and can cause real pain, and emotional pain as well. Allot of folks who know about such health issues doesn't make it less important and real. PTSD causes many health problems- The VA research team has come out with a new diagnosis connected to PTSD- " It's called - unknown serve internal anxiety" You can feel to your core and yet it doesn't show up in a normal physical. The many combat veterans have now been re-diagnosis' with this- as I have been as well. It doesn't go away, they give medication that only helps calm the anxiety some Folks that have these conditions need a true and trusted friend to talk to and fellowship with daily-if need be, and someone who isn't trying to give you an answer-or saying you should do this or that. You need a friend -who is a real friend that cares unconditionally. I hope that make some sense, it's very lonely when trying to get through the day by yourself. I'm bless with a retired Army Nurse and continues in her field. Bless you for sharing, and I so appreciate your transparency. JJ
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2 ReactionsThe length or brevity of your posts isn't an issue. It's good to have a place to speak and be heard without being judged or viewed as an oddity. I don't have Parkinsons, but I am being treated for major depressive disorder, anxiety, restless leg, idiopathic peripheral neuropathy, and PTSD. I retired early from pastoral ministry, because of my mental health issues, and suicidal ideation. Neuropathy is a more recent problem, and so far, haven't yet found a medication that would treat the chronic burning pain. Chronic pain, as we all know, has a direct effect on depression, at least it does in my case.
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1 Reactionhttp://www.theepochtimes.com/n3/1776567-suffering-from-acute-or-chronic-nerve-pain-this-15-minute-procedure-could-bring-you-immediate-relief/<br><br><br>I just read this article about Hydrodissection which is a simple procedure to relieve nerve pain. Maybe it can help some of the members of the chronic pain group? It is at least worth reading about. 19lin<br><br>
Kim- thank you for sharing so much in detail-which I do very much appreciate- and nothing you say or anyone is babble- Yes I do have five doctors that I'm blessed to have working with me and all the health issues- including PTSD and the Internal Anxiety- Agent Orange as many know shows up or can, anywhere in ones body- and then it will travel wherever it wants. I had a heart attack three months ago and my Doctor at the Mayo clinic told me - she believes it was caused by Agent Orange. First time for me, to ever hear those words from a Doctor outside the VA Hospital. I hear you Pastor also, your pain and depression I pray becomes easier to manage, as manage is all we can do most of the time. The medications I take is for every thing from the Parkinson's, My Spine, my lungs and heart issues and on it goes- but I'm very thankful we have such good care here. As many of you have- been to other countries where the health care was only a shot or a small bottle of pain pills ( if your lucky). There is so much to digest from what I have read " From All of You" and each and everyone if important and listening to my issues ( I truly thank you and for your kindness and understanding). JJ
-
Like -
Helpful -
Hug
1 ReactionThis is interesting, @19lin. Hydrodissection might fix a lot of people's pains from skeletal pressure on vital nerves. Would this injection offer a permanent fix -- as opposed to temporary relief from injection of a local pain killer?
What's surprising to me: I didn't know that MRIs don't display nerves! Ultrasound is better for this?
-
Like -
Helpful -
Hug
2 ReactionsInteresting about MRI. I have never heard this and wonder if it is true or not. I noted, just for interest, the site is a site that posts paid content. A PR site. Might be valid, but I would want to know more from alternate sources.
Plus the other articles I read do not say there is no nerve information displayed via MRI.
-
Like -
Helpful -
Hug
1 ReactionI'm anxious to learn more about shortcomings of MRI in imaging nerves, as you are @IndianaScott. Libraries at NIH carry little on the subject, and what is there comes from sports medicine. In some of the articles/comments, there is mention of more use of ultrasound because MRI images aren't definitive enough. "Nerve entrapment" is the condition discussed, and it occurs when nerves are bound to muscles, ligaments, and fascia tissues, which may not stand out in contrast to nerves on an MRI image. Mayo mentions hydrodissection only in connection with ophthalmology treatment of misshapen cornea.
Thanks for shareing so you have pain from depression amd it caused symptoms like Parkinson. I just spent 9 days at mayo in Minnesota with my client she went for her pain and her feet are bowed in and she can not walk she has other thing charlotte Doctors have diagnosed her with and mayo had a different view. They say it may be from stress which I found very hard to believe she had tremors spansisity and is very weak at times . And the list goes on . We go back in October for a mussel disorder and he thinks that al she needs is physically therapy which she did in charlotte . He said her brain needs to tell her feet to walk and they will fix them shelf .have never heard stress causing this much crazy stuff.
.
Scott- you really hit on something- " Not alone", I find the people hear about ones serious health problems- the less they come around. I'm sorry to say there are friends, and than there are true friends- and if one if really blessed - you might have 2 or 3 such friends. One of the sad issues I hear from my soldiers ( is no one really cared anyway- they are referring to the VA system of mental health, which is a 40 minute discussion about your PTSD or your feelings of being alone without purpose, and then they are asked to leave and come back next week) They don't really get a chance to express the real problems-mainly because some don't know how to put into words how they really feel. We all need some one who will sit with you and let you dump and not correct everything you say and think they know better what you need- or what you are saying. It's a hard road- for me, my faith keeps me going each day- does that mean it's easy (NO) or because I believe in God I shouldn't have health issues- again (NO) no where does the good book ever teach we are given a pass from health problems. No question we all need each other- and to listen as well and be the kind a friend ( I believe) that is always there giving unconditional love and friendship. JJ
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Helpful -
Hug
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