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HI @johnjames and @trouble4343. I read your posts with interest. I am Scott and I was the caregiver for my wife for 14 years while she battled brain cancer. One of her toughest issues was her chronic pain and fighting the anxiety it would bring on. It is awesome to see you are wiling to talk about your experiences here. Chronic pain, depression, and anxiety are so often ignored, dismissed, or seen as simply 'complaining'. Helping others understand they are not alone in their fights is very important I think! They also can be extraordinarily tough to manage in our current healthcare system.
I send you my thanks along with courage, strength and peace!
Replies to "HI @johnjames and @trouble4343. I read your posts with interest. I am Scott and I was..."
Could I ask if someone would share their daily struggle with Parkinson's- what's the hardest part of your day? I was diagnosed over 2 years ago- I seem to find that everyday is a new challenge - The lady with Parkinson's for 5 years told me- everyday for her is a bad day, boy that's really sad. I know the days you don't seem to feel like yourself anymore- the morning for me are the worse, I can't get my body moving for a couple hours- it like dragging 100 pounds of wood behind you. Then the depression moves in most of the day, plus you want to go to the mall or something- yet the body doesn't want to follow. Make Sense to anyone? JJ
@johnjames, great question about the daily struggle with Parkinson's. I suggest you repeat your question here to this group of Connect members who live with Parkinson's http://mayocl.in/2abXKUs Simply click that link and post your message.
I know a women w Parkinson's - I never knew she had it because stem cells<br>cures the shaking. when she goes for new treatment - face hair vitality all<br>improve.<br><br>Mari*a*n<br>
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Thanks again Scott- I do appreciate your kind words and words of wisdom that we all need to hear. You know Scott- to share a little more about depression-which can and does muddy everything is our daily lives, as least it does for me. I, like many of you here and those in some form of battle in life, has experienced a trauma, and trauma is one of the key elements to depression and despair, and it doesn't have to be only from war. For allot of soldiers it is true - that the trauma we all have seen- follows us through the rest of our lives, good and bad. When I came home the first from Viet Nam- I slept on the floor and asked my Mom not to shake me in the mornings-but knock on my door. It wasn't because I would take a swing at her- it was because of Hypervigilance - you just want to find a safe place and a place that's quiet and secure. Trauma, Depression, despair, thoughts of suicide, and suicide it self- sometimes is related to lack or when we can't find any Innocent in life, so matter how hard we look. Really, the foundation to PTSD is a number of issues, but one I hear the most is, No Innocent, no one will listen, no purpose, no mission in life, our self worth is gone-or we think it is, and therefore it is. This is why I know -I need real friendships, real fellowship, and purpose to help others and I believe in turn we help ourselves. That's my Prayer anyway. Thanks again for all your wisdom and encouragement .... JJ