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Newly diagnosed with prostate cancer: What might I be in for?

Prostate Cancer | Last Active: Oct 23 6:42am | Replies (43)
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@florida11

I lived in Jacksonville for a year, and then outside Orlando for 7 years. I am now in Colorado, but I spend a fair amount of time on the gulf side.

I don't remember ever getting a bone scan. When initially diagnoses, I only remember CT scans and maybe an MRI. The first PET scan was done more recently (a couple years ago) when my PSA was rising and I went to Mayo. I think my local urologist was behind on technology and aggressive treatment.

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jc76 | @jc76 | Oct 22 5:57am

@florida11
Not being a medical professional can only pass on what my R/Os as both Mayo and UFHPTI wanted for testing.

After rising PSA numbers even though still normal I was referred to urologist. Urologist did MRI with contrast. MRI revealed suspicious areas and then had a MRI/Fusion biopsy. They found several areas of prostrate cancer. Some were 3+3 and one 3+4 which placed me in intermediate risk. R/O at Mayo first recommended radiation with hormone treatment but wanted to do more test to help determine the diagnosis.

R/O at Mayo ordered bone scan and Decipher. Bone scan came back negative. Decipher came back low risk not intermediate risk. Changed treatment from radiation with hormone to radiation only.

Went to UFHPTI for second opinion ( I am one among many that recommend second opinions). R/O there agreed with dignosis but wanted another test done PSMA. That came back negative also. Thus has 30 rounds of proton radiation at UFHPTI.

From what my R/O said and my urologist doing those tests (PSMA, Decipher, bone scan) all help determine whether cancer is inside prostate only or spread and the Decipher will confirm the aggressiveness of your cancer.

I am not sure why your R/O and/or your urologist did not recommend them PRIOR to ever recommending treatments. But you will see on MCC these tests are very valuable and manny like me on MCC will recommend having them.

A CT scan cannot provide the detail of tissues like an MRI. This comes from every medical provider that I see. It is not my opinion but what is passed on to me. I hope you had an MRI not just a CT.
Good luck!!!

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