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MRI Brain scan 25yo male-lesion

Brain Tumor | Last Active: Mar 29 4:29am | Replies (17)

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Profile picture for renee5 @renee5

My son was 20 when dx, he is now 24. He had surgery (had a stroke a day later as well to rehab from) then 6 weeks proton radiation at Mayo. A month after that got his port in and started chemo (cisplatin, etoposide and Cyclophosphamide) for 6 cycles. We scan every 4 months and are in observation mode.
He is doing pretty well…Obviously his life dreams have been derailed with a cancer diagnosis a week before his senior year of college and has changed paths in life…still not exactly sure what he will be able to do.
I’m doing ok….not great but not horrible, sometimes still finding it hard to believe. We have 2 other kids besides Matthew, it’s a tough pill to swallow when your kid is dx with cancer.

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Replies to "My son was 20 when dx, he is now 24. He had surgery (had a stroke..."

@renee5 - I know how you feel but your sons story gives me hope my son will survive this ordeal as there are survivors of this horrible disease. I know our medical team has given us great info. On survival rates and other items to look for but it still feels like a crap shoot with every chemo session, and every scan. I know my son’s dreams were derailed with his cancer diagnosis. He is still able to drive, and currently lives with me since he has two more rounds of chemo to go. His younger brother is scared for him but doing his best to be there for him in any capacity needed. I am doing well too, but it is lonely as life goes on as you try to keep your child alive. I have a few Friends who check in on me and they ask me to come hang out but I am too tired during chemo week. Other weeks I am just tired from work and trying to keep it all together. I do once a month counseling and some meditation to help with my frustrations with the diseases.

@renee5 I love the name Renee! My sister Renay ( spelled a little differently ), died from a stroke, just a couple years ago. She, like me, was elderly! I miss her! A devastating diagnosis like that, for such a young man, changing his life plans, and yours too, in such a short period of time, is not something that anybody can get used to! So, you have my heartfelt concern for your son’s well being. Did the stroke cause damage in anyway? My favorite young cousin was diagnosed with an acoustic brain tumot at a young age. He was working in the criminal justice field, and he had a very demanding job! The brain tumor changed his and his parents life plans, forever! He lost most of his hearing, permanently. It took many hours for the surgeons to remove the tumor! My cousin went back to work, on limited duty, but he finally had to retire from that line of work. Five years later, now, he has another job, that is a much better fit for him, where he is happy, and has adjusted and is able to get back to having a good life! So, it is my hope that your son will be able to adjust, after this traumatic process is resolved, where you and your son, can find that there is hope, after a brain tumor diagnosis, where, with adaption, one can achieve happiness and a positive future!