Dear Colleen, Thank you for replying. I apologize for the delay in replying to you. Are you able to help me make an appointment? I am desperate for reduced pain.

On 10/30/23 a gastroenterologist at MNGI performed my 7th endoscopy since 1/15. Her report says: *Stomach Comments: Shape of the stomach was atypical, with level of the pyloric channel appearing to be "above" the level of the GEJ on retroflexion, with extreme J shape, and possible diaphragmatic h ernia at the pylorus/duodenal bulb. Difficulty navigating the scope ni this near 360 degree rotation, only allowing for D2 extent reached, with visualization to majority of D3. that she was unable to advance the scope through the nearly 360-degree rotation."

I have not been officially diagnosed with gastric volvulus. Recently, a stomach surgeon opined that I do not have any indications of a "true volvulus" Earlier he expressed that during exploratory surgery he untwisted my stomach from being rotated to the LH-side. Could I have partial or an intermittent volvulus? While rare it happens at least according to web-searches anyone can find.

Taking Lyrica, oxycodone and Tramadol every day is no way to live.

A friend of mine recommended the names of two Dr's. they described as outstanding. They are Dr. Andrea Wagner; GI Department (?) and Dr. Luis Tapias Vargus.

In this journey I am where I am at after following the steps that are written in research paper written by Dr. Seth Sweetser. Is it even possible that I could be seen by Dr. Sweetser?

As-is, I would see whomever was available. The best way I can describe my pain is like hell on earth.

I hope that the pdf documents arrived.

Dear Colleen, To clarify I have not been diagnosed with volvulus. On 10/30/23 a gastroenterologist at MNGI reported: “From what we can tell, your issue is primarily related to the anatomy of your stomach.” “Stomach Comments: Shape of the stomach was atypical, with level of the pyloric channel appearing to be "above" the level of the GEJ on retroflexion, with extreme J shape, and possible diaphragmatic hernia at the pylorus/duodenal bulb. Difficulty navigating the scope in this nearly 360-degree rotation only allowing for D2 extent reached with visualization to majority of D3.” Following that I was advised to have a Spinal Cord Stimulator implanted which did not help. On 9/13/24 a surgeon at Allina performed, "exploratory laparoscopic surgery w/possible gastropexy." He expressed that he, "reduced the angulation"of my stomach. For 6-days afterwards my pain was all but gone. For the 1st time in 10-years I felt, "normal" and picked apples, worked in our garage, rode bicycle and golfed 14-holes pain-free. When the pain returned on day-7 the surgeon opined that it was because my stomach, "rotated back to where it was". Upon on-office visit he said that I did not have, "a true volvulus", that he "could not explain why" my pain went away and that I should seek a new pain Dr. All of that has happened recently. I forgot to say that throughout all this whenever I have tried to jog or walk quickly (since my paralysis I can no longer jog) it feels as if there is something loose inside my abdomen. As-is it seems logical to investigate, "intermittent gastric volvulus".